ziggidypoo
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On the night of 12th, november, was sent to er after many many pc's and cp's - in ambulance was said (remember bits and pieces - foggy) she's coding - cva - pupils fixed and dilated. At er - code blue sounded all over hospital - dr. Put iv in juggler vein - but, put hand on chest - "she's breathing - vitals normal - not a code - she'd post-ictal".
My question is during post-ictal do the pupils get fixed and dilated??
Another time, i was about to be intubated, but they found out all vitals normal.
Once i "came to" in a very slurred voice i said over and over "post-ictal".
Nobody seemed to comprehend.
Once my vitals were all normal - i was pretty much left alone - deep sleep.
I am soooo sick of medical staff not understanding epilepsy.
I am not yelling - just easier to see in caps - forgive me.
I was in hospital 5 days this time, a week last month.
Taken off of triliptal due to low-blood sodium, now neurologist said she made a mistake - i have to have triliptal to not have pc's and cp's - had low magnesium this time - dr said due to poor diet.
Diabetes elevated.
It's good to be home. Now, taking more keppa, more neurontin, more triliptal, same klonapin. No seizing for about 5 days.
I feel fantastic.
But, apoxia also in consideration as o2 was also down.
I am frustrated - is the diabetes and sleep apnea causing seizures?
Was i really code blue - after such realm of seizure activity i often seem to stop breathing.
I must sleep all night w/cpap and o2 and any naps and am very short of breath - have copd, too.
I am frustrated because i am afraid that i am incorrectly diagnosed.
Is this brain disfunction - epilepsy - or is it pulmonary??
Stress relate?? One adult kid facing soon death of father in law/ bankrupsy/ loss of home/ failed nursing test/ emotionally disturbed child/ marital probs/ financial disaster/ etc. Other adult kid facing financial stress and relationship probs and yells and cusses at me and tells me to shut up - just like his father did.
Can stress bring on status epileptis and having cp's and pc's one after another with short post-ictal after each - is that status?
Memory got better when blood sugar was lowered w/ insulin.
Just frustration.
God bless ya'll.
Thanks for listening.
My question is during post-ictal do the pupils get fixed and dilated??
Another time, i was about to be intubated, but they found out all vitals normal.
Once i "came to" in a very slurred voice i said over and over "post-ictal".
Nobody seemed to comprehend.
Once my vitals were all normal - i was pretty much left alone - deep sleep.
I am soooo sick of medical staff not understanding epilepsy.
I am not yelling - just easier to see in caps - forgive me.
I was in hospital 5 days this time, a week last month.
Taken off of triliptal due to low-blood sodium, now neurologist said she made a mistake - i have to have triliptal to not have pc's and cp's - had low magnesium this time - dr said due to poor diet.
Diabetes elevated.
It's good to be home. Now, taking more keppa, more neurontin, more triliptal, same klonapin. No seizing for about 5 days.
I feel fantastic.
But, apoxia also in consideration as o2 was also down.
I am frustrated - is the diabetes and sleep apnea causing seizures?
Was i really code blue - after such realm of seizure activity i often seem to stop breathing.
I must sleep all night w/cpap and o2 and any naps and am very short of breath - have copd, too.
I am frustrated because i am afraid that i am incorrectly diagnosed.
Is this brain disfunction - epilepsy - or is it pulmonary??
Stress relate?? One adult kid facing soon death of father in law/ bankrupsy/ loss of home/ failed nursing test/ emotionally disturbed child/ marital probs/ financial disaster/ etc. Other adult kid facing financial stress and relationship probs and yells and cusses at me and tells me to shut up - just like his father did.
Can stress bring on status epileptis and having cp's and pc's one after another with short post-ictal after each - is that status?
Memory got better when blood sugar was lowered w/ insulin.
Just frustration.
God bless ya'll.
Thanks for listening.