:hello: Staci
My family/relatives were like this. While
everyone except for my mother, little
sister, and my son - are now all deceased.
Only a couple of my deceased relatives
were ever acceptive of my Epilepsies.
After when I was married, my son grew
up with this, but he also has Neurological
problems of his own.
Unfortunately it took years for my mom
to realize Epilepsy. In 2006, my mom
had come to accept it, and had the
opportunity to even see the vEEG at
the Hospital multiple times when she
was there - when the Epi, ARNP, vEEG
Tech - showed them to her and explain-
ed it all to her and the types of seizures.
My mom only knew 2 seizures, Grand
Mal and the children's seizure - Petite
Mal - but she didn't realize there were
many others. So she learned all of this
in 2006, and she learned I had it for
ages and since birth. She began to
understand the types and what they
were and what I had.
And in addition, she learned even more
from her Sunday School class, and some
from her Red Hat Society - they have
folks in their family who have Epilepsy
or Epilepsies. So it was a gradual process.
But she also learned I was
intractable / refractory.
She is still learning more and more
about me; however on the flip-side of
the coin, my little sister on the other
hand, freaks out - even though my
son calmly explains it all to her, she
is somewhat resistant, and keeps her
distance.
The problem isn't YOU - the problem is
the other people - some are more
open and receptive than others.
onder:
