I have random tonic Clonic status. does that mean never alone?
- Thread starter Janus
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That's a tough decision, and a personal one. In one sense, yes you should always have someone nearby since status epilepticus can be fatal. On the other hand, that's not always an option -- or a preference. I recommend that you:
A: Ask your neuro's opinion (and continue to discuss treatment options that could address your refractory seizures).
and,
B: Get to know your neighbors, your local EMTs, and your local ER. Is there a family member or friend that can check in on you regularly?
A: Ask your neuro's opinion (and continue to discuss treatment options that could address your refractory seizures).
and,
B: Get to know your neighbors, your local EMTs, and your local ER. Is there a family member or friend that can check in on you regularly?
Hi Janus,
I had absence status seizures for awhile where I would be out of it for 3 min. to 2 hrs. I found out it was the Neurontin that I was taking that caused the status seizures. I continued to go to work each day but there were days when I stayed home. I let my co workers know what was going on and my employer had my husbands phone number in case I had to leave work. It all depends on how you feel regarding going to work, I tried not to let it stop me but I did have hard days. I wish you only the best and May God Bless You!
Sue
I had absence status seizures for awhile where I would be out of it for 3 min. to 2 hrs. I found out it was the Neurontin that I was taking that caused the status seizures. I continued to go to work each day but there were days when I stayed home. I let my co workers know what was going on and my employer had my husbands phone number in case I had to leave work. It all depends on how you feel regarding going to work, I tried not to let it stop me but I did have hard days. I wish you only the best and May God Bless You!
Sue
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I usually only have partial seizures, simple and complex, but I do have a grand mal thrown in there at times. I almost never have an aura letting me know the seizure is coming on and I have no problems with being alone.
As said it's a personal decision though and ask your neuro about it. Do you think feel comfortable being alone or not and go from there.
As said it's a personal decision though and ask your neuro about it. Do you think feel comfortable being alone or not and go from there.