Neuro appointment in December!

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occb

occb

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We heard back from the neuro, and my partner has an appointment in december. Yay!

We've already begun keeping record of things as meetz suggested (well, as well as my partner's able to remember what happened and add it :lol:)

Does anyone else have any suggestions for us to do from now until the neuro appointment?

I can't wait -- I just want this settled one way or the other. Although, at this point, it'll be a relief if he's diagnosed with E. Almost 30 years of doctors scratching their heads and saying "I don't know" can get... demoralizing.
 
Sounds like you're doing everything right! Keep a handle on anything you suspect might be a trigger, and when the December appointment looms, get set with the info and questions you're going to offer up to the neuro.
 
Oh yeah, questions too. Good idea! Thank you Nakamova.

I've also created several lists:
1) symptoms he's had since childhood
2) additional symptoms he developed in adolescence
3) changes in symptoms with the introduction of different meds (what we can piece together from his past, and what we've observed in the last two years)

Ummm, I guess he's right, I can get a little obsessive about things :lol: The thing is, I'm normally not this organized.
 
Hi there from a fellow canadian occb! If you need anything just ask, everybody here has been real awesome and helpful with me here, so i wanna keep the cycle going. We might even live near each other. Im here in Manitoba.
 
If I

didn't remember to mention it before, you might consider videotaping some of his seizures that you aren't sure what they may be, making a copy of the video (CD/DVD), and giving to the neuro to look at. That can help them with the diagnosis process too.

You're doing everything right, and I know it's not an easy thing. But, in the end, it will be worth it, I promise. We'll all be rooting for you.

Let us know how it goes!!

Meetz
:rock:
 
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