Rough few weeks

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

gnault

New
Messages
259
Reaction score
0
Points
0
It's been a rough few weeks. A few months ago my wife had to go on prednisone like she often times does because of her lung disease. When she reduced the prednisone like she often does the puffiness did not go away. As time progressed she had more bloating and the puffiness in her face seemed to get worse. Two weeks ago her platelets and blood work started giving her issues as well.

Two weeks ago she went to the emergency department where after long stay finally had a cat scan. After the cat scan she was told that she had stomach and liver cancer. She eventually made it to a room in internal medicine department. They thought the issue with her blood work was due to an immune issue. They did a biopsy, tried to treat other issues. As they continued to treat her with various medications she continued to get worse.

Within a week and a half of being admitted into the hospital my passed away. Things took a turn for the worse very quickly for her. I was able to hold her in my arms when she took her last breath. She would have been 49 this October and we would have been married for 24yrs this fall.

Its has been a very tough few weeks that likely so far I have survived fairly well. Her celebration of her life service was at our church this past Sunday where I did her eulogy. It has likely been the toughest couple of weeks in my life. Both of my parents died of cancer as well. I have had a couple of weird moments where my body felt completely flush or a few other weird sensations.

Gilles
 
Hi Gilles,

I'm so sorry that you wife has passed on. My prayers are with you and your family and I wish all of you only the best. May God Bless You!

Sue
 
That's not just a rough few weeks, that's a wrenching shock to everything in your life.

I am so sorry for your loss. Death is such a major aspect of life and yet not dealt with well by society on so many levels.

If you have reasonable access to therapists who help others with grief, please consider therapy. Of course every death is different, everyone's response is different and individuals respond differently over time. I know every death in my immediate relatives (sibling, parents, child) has been completely different and was not comparable to each other and not even comparable to other family members experiences of those same deaths. Most haven't required therapy but when it is needed, it truly is ok for someone to get help. It takes a long time to come to some new kind of normal. Please take good care of yourself.
 
I am so sorry for your loss.
I attached two pictures so you can see what see looked like. She was utterly gorgeous. I can't stop looking at her smile in her pictures. It's still a shock that roughly three weeks ago I had a wife and then undetected liver and stomach cancer and she's gone. I'm trying to get sleep and I'm making sure that I get my medication too. I found a piece a paper that she dabbed her lipstick on and I kept it. I call it my forever kiss from my forever love. I was able to slide in behind her in her final moments and hold her tight as she breathed her last breaths. I didn't let her go for probably another ten minutes afterwards.

Thanks again.
f0527e1489f7b26c721f9d42d3c23fc0.jpg
9c7cbf877069292d64611f343d93b5ca.jpg
f21aecc00fa236cf952abdaa152a6ba2.jpg
813df2e5bd26b88f34df53e438fa7daa.jpg


Sent from my SM-T350 using Tapatalk
 
:hugs:

I'm so sorry Gilles, what a terrible swift loss for you. Thinking of you as you grieve.
 
Beautiful photographs that show your love for each other. Thank you for sharing them.
 
Sharing eases things. I'm in a phase that I sometimes feel guilty but mostly feel like I'm just here. I don't feel content, sad or happy. I'm mostly just here. I found the email address to one of the doctors that treated her roughly thirty years ago before we met. I thanked them for treating her because if they hadn't we would likely have never met. Because they treated her we had almost 24yrs or marriage and because they treated her and found this disease she had she had the chance to be a mother to the two boys than we adopted.

Some people around me still worry that I may come crashing down hard one of these days. When I typed the email to the doctors some tears started. Tears have to problem coming and I won't try to stop things if they do. She was an incredible gift to me from God and I'll cherishe her forever. I still have my wedding ring and I don't have a clue how long I'll keep wearing it. I'll keep wearing it as long as it feels right.

The one picture was when I held her tight as she took her last breaths. I sat there for probably for a few hours after everybody left. They actually had to come get me because I didn't want to leave her side.

Thanks to everybody here for being understanding.

Sent from my SM-T350 using Tapatalk
 
Hi Gilles,

I'm really sorry I didn't respond - I didn't receive an email when you replied. That must have been very special for the doctors to get your email. How are you doing now? That's wonderful that you and your wife have two adopted children together. How old are they?
 
Hi Gilles,

I'm really sorry I didn't respond - I didn't receive an email when you replied. That must have been very special for the doctors to get your email. How are you doing now? That's wonderful that you and your wife have two adopted children together. How old are they?
The boys are 17 and 14 and for the most part they seem to be doing ok. I say to everybody that they seem to be doing better then I am. The one hospital said that they would forward the news to the care team that was still there that took care of her. I never did hear anything from them but that doesn't matter.

Most days I do ok but I'm also awake most nights until at least midnight and I'm awake at 5:25 to get ready for work. I have mini aniexty moments in different situations, sometimes out of the blue. Today I had a bit of one when I thought about the fact that she didn't get a chance to see the kid's final report cards. I have almost made a few emotion charged decisions that I talked through with someone I know. Someday I just wish that it was all a bad dream. A couple of Sundays ago I couldn't sing in church without starting to cry. I just except those moments when they come.

There are days that I either go for drives or I will extend my errands initially without realizing it. My bedroom and livingroom are not my favorite places because she used to be there and she isn't anymore. I just need to use her memories to help keep them a good place. I've done certain things along the way to feel right. A gift or two for others, I did the eulogy for her service. I do monthly support for Belize and the Dominican Republic, two countries that I have done humanitarian work with her encouragement supporting me.

I am glad that I was with her until the end.

The Youtube videos are the same video essentially but to different music, if you're interested.

https://youtu.be/-kotItoNCFw

https://youtu.be/beSKv4zDW6o

Thanks for asking how I'm doing.

Gilles

The two items in the frame are as follows:

- I found a lipstick dabbed paper in her purse and I call it my forever kiss from my forever love!
- While going through old cards, letters and emails I found an undated note that said "Don't forget how much I love you... Always. Love Darla"
436830ce29b88a5b05200f070c7e16b4.jpg
36ee71d12cb1944b0ec5a81015f04204.jpg
0158f94a2f376a2e2b5749c4aba20850.jpg


Sent from my SM-T350 using Tapatalk
 
I love the frame with the lipstick and note in it! Handwritten notes are such a wonderful keepsake. I watched the video. You have a very beautiful family. I am glad your boys are doing ok; it must be so hard to feel and express those intense and difficult emotions as a teenager. I am thinking of you all even though we haven't met.
 
I love the frame with the lipstick and note in it! Handwritten notes are such a wonderful keepsake. I watched the video. You have a very beautiful family. I am glad your boys are doing ok; it must be so hard to feel and express those intense and difficult emotions as a teenager. I am thinking of you all even though we haven't met.
Sure we have, through these posts and this forum we have met and share similar challenges. Pretend that we have met because you have seen what I look like.

Gilles

Sent from my SM-T350 using Tapatalk
 
Sure we have, through these posts and this forum we have met and share similar challenges. Pretend that we have met because you have seen what I look like.

Gilles

Sent from my SM-T350 using Tapatalk
She has a smile that I can't get out of my head. I'm reading emails from the year 2000 at the moment. We saved our letters and emails from when we first met and I was still in the military.
8202f3a4530da8f8ace07b4dde003601.jpg
4a5724e95b56e0f47ab3945b6a2ad866.jpg
01c6aa541d8a173688334f6ff62e8c21.jpg
8fe8b3e14290f49c2f269802ced1240f.jpg
0db2e346087db0b57469f8039df9e86f.jpg
c1db5a321d6794404078cfa8787823bf.jpg
733d5df82b183cf326ca147745f6742a.jpg


Sent from my SM-T350 using Tapatalk
 
Back
Top Bottom