stringbean
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Oh Boy, Every day for the last nine days I have been having seizures, every day except on Sunday. And they are just getting worse as each day goes by. They started last Wed. with just being mild partials then by Monday some nasty partials. Yesterday I had two complex partials, followed by a migrane.
Now I am pretty sure I know exactly why I have been having them all these days and they just seem to be getting worse and more often as each day goes by. Ok, I seen my neuro on around the first of May, and at that time the seizures were starting to get worse and more often but not as often as this past week (They have never been able to get them totally under control, even with surgery in 2004) but they has subsided alot not as often or as bad, just different feelings, like the metal taste in my mouth. So back to my neuro fisit, since they have been getting worse, we decided to try me back on the name brands of two of my meds, Tegratol XR and Lamictal. Well he did write on each prescription brand only, however when it came to the Tegratol XR he had only wrote take two a day when I was taking four of the generic, I was pretty sure it should still be 4 even with it being the name brand. So I called the office and they said they would call it in as 4 a day, now when I went to pick it up it was the generic, I didn't get it and the one I had that was name brand would have been refilled as the generic.
Anyway this is getting quite long. As of Wednesday It has been the third time since my visit in May that I have called the neuro's office go try and get the right med and the right dosage called in with no luck, and now even the generic Epitol is only 2 instead of 4 a day. I am just at my wits in, I don't know what else to do. My next appt. with my neuro isn't until November.
One lucky thing, I guess, is that when my daughter went to pick up like 11 of my monthly meds (I have to take so many differerent med I have my own little private pharmacy) they did fill the give me the Tegratol XR instead of the Epitol even though it didn't have brand ness on it.
Then after getting so irrate yesterday after finding out that they still hadn't called it in right, later that day someone from my neuro's office called and I tried again to explain exactly why I needed Tegratol XR called in as brand ness and this being the 4th time now that I have talked to someone in his office I am so confused on how to explain to them why I am calling and they are also very confused, at least this lady said she would check my chart and with my neuro so we could get this figured out so hopefully maybe I will finally get the right med and the right dose of it called in. If not then I just give up I don't know what else to do this will be the fourth time now and I am at my wits in. I just feel like just go ahead and only take 2 of the pills a day and when these daily seizures go into grand-mals, which the last two times this has happend I have ended up taken to hosp my ambulance because I go into Status Epileptis. and then maybe I can get the right med with the right dose.
Now I am pretty sure I know exactly why I have been having them all these days and they just seem to be getting worse and more often as each day goes by. Ok, I seen my neuro on around the first of May, and at that time the seizures were starting to get worse and more often but not as often as this past week (They have never been able to get them totally under control, even with surgery in 2004) but they has subsided alot not as often or as bad, just different feelings, like the metal taste in my mouth. So back to my neuro fisit, since they have been getting worse, we decided to try me back on the name brands of two of my meds, Tegratol XR and Lamictal. Well he did write on each prescription brand only, however when it came to the Tegratol XR he had only wrote take two a day when I was taking four of the generic, I was pretty sure it should still be 4 even with it being the name brand. So I called the office and they said they would call it in as 4 a day, now when I went to pick it up it was the generic, I didn't get it and the one I had that was name brand would have been refilled as the generic.
Anyway this is getting quite long. As of Wednesday It has been the third time since my visit in May that I have called the neuro's office go try and get the right med and the right dosage called in with no luck, and now even the generic Epitol is only 2 instead of 4 a day. I am just at my wits in, I don't know what else to do. My next appt. with my neuro isn't until November.
One lucky thing, I guess, is that when my daughter went to pick up like 11 of my monthly meds (I have to take so many differerent med I have my own little private pharmacy) they did fill the give me the Tegratol XR instead of the Epitol even though it didn't have brand ness on it.
Then after getting so irrate yesterday after finding out that they still hadn't called it in right, later that day someone from my neuro's office called and I tried again to explain exactly why I needed Tegratol XR called in as brand ness and this being the 4th time now that I have talked to someone in his office I am so confused on how to explain to them why I am calling and they are also very confused, at least this lady said she would check my chart and with my neuro so we could get this figured out so hopefully maybe I will finally get the right med and the right dose of it called in. If not then I just give up I don't know what else to do this will be the fourth time now and I am at my wits in. I just feel like just go ahead and only take 2 of the pills a day and when these daily seizures go into grand-mals, which the last two times this has happend I have ended up taken to hosp my ambulance because I go into Status Epileptis. and then maybe I can get the right med with the right dose.
