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Old 09-23-2008, 04:55 AM
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seizure journal question


If you keep a seizure journal, what do you use to decide what you record or don't record. I've been keeping one since I overcame those side effects from my last dosage change

What I'm doing is not recording any solitary twitch unless I notice a lot of little twitches in a time period or a big one in the same time period. Or unless something tells me its definately a seizure - ie seeing the skin on the back of my hand jump up. Basically I'm giving it a 3 second minimum for twitching. I record any screaming hiccup regardless of how short it is

This is keeping me from over-reporting, but I'm also wondering if its causing me to under-report whats going on.

I'm noticing some triggers I hadn't noticed before, but nothing unexpected - the garbage truck back up alarm means ringing ear, roommate opening bathroom door means a hiccup (seemingly due to sound not light as originally thought), and turning off my bedroom light means a lot of solitary twitches until I fall asleep.

Last edited by darkmarkshark; 09-23-2008 at 04:57 AM.
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Old 09-23-2008, 06:47 AM
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along the way, I WOULD make a note about how all of these solitary twitches DO happen. And then, make reference to it when needed......but truthfully, it would just be better to make a note of them when they happen.........
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Old 09-23-2008, 08:02 AM
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It is difficult to always have your journal/calendar on hand. What you might consider doing is twice a day, just write an entry as to how you have felt. What you noticed, and specifics when necessary. You need enough information so that when you look at the entries over a months time, and then over a six month time period that you would be able to grasp what is happening, and then hopefully why.
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Old 09-23-2008, 11:05 AM
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We used to record everything. We recorded all seizure activity (color and symbol coded for different types of seizures) and her menstrual cycle on a calendar. We tracked what my wife was eating and her sleep schedule in a journal. Between the two, we started noticing some patterns.

Basically, I'd recommend recording anything you think might be related to your seizure activity.
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