want off Tegretol after 41 years

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Tegretol has never really controlled my seizures that well and that's why I take other meds with it. But, I noticed that my migraines weren't as bad when I went on Tegretol and it's also a mood stabilizer as is Lamictal.
 
I am truly giving up on what doctors say,in couse of 36hours I gone from moderately bad brain damaged to having none.I think I do what my body and mind thinks and feels is right.
Seems tegratol giving you problems maybe that your body saying enough is enough,tell your doc that
 
Tegretol was the first AED I was given--in 1987. They had to take me off of it within 2 weeks, though. I had a severe reaction to it. I had a rash all over my body, a very high fever, & I lost 85% of my hair. The hair never grew back, and now thanks to Topamax I'm losing what is/was left.
 
Saw my neuro today about Tegretol coming off!

I will take 50MG of tegretol and I will slowly decrease it and I will go up on the Fycompa by 2MG
 
Tegratol first thing I took for e had horrible side effects but very difficult to describe them I just felt yuk and I get shudders just thinking about side effects.It stopped e but I rather have e and anything else than those side effects very surreal
 
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