Coping With Epilepsy VNS Message Board
Free Advertisement

Go Back   Epilepsy Forum > Peer Support > The Kitchen

LinkBack Thread Tools
Old 09-26-2012, 04:36 AM
New Here
Join Date: Sep 2012
Location: Christchurch, New Zealand
Posts: 3
Thanks: 2
Thanked 1 Time in 1 Post

Weaning off levetiracetam (Keppra)

My son is coming up on two years since his last tonic clonic seizure. We would like to wean him off his levetiracetam to see if he will be seizure-free without drugs. We have the support of his neurologist for this. One thing I am really looking forward to is finding out whether the attention deficit he has had is related to the levetiracetam. The neurologist has said "Look, your son has faulty wiring in his brain and that will be causing more than just seizures. Even if he outgrows the seizures, he will never outgrow the faulty wiring." I'm thinking how can this be true? Don't kids' brains rewire themselves all the time? So, does anyone have any experience of going off levetiracetam or just growing up and finding that attention and concentration improve?
Reply With Quote
Old 09-26-2012, 01:56 PM
Super Moderator / Thank You Queen
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,486
Thanks: 950
Thanked 7,341 Times in 5,421 Posts
I haven't been on Keppra, or been a kid with ADD, but I would urge you to look into neurofeedback as a treatment for your son's attention issues and/or seizures. It's been used as a treatment for both. The whole premise behind neurofeedback is that the brain CAN rewire itself -- in the case of nfb, through repeated brain "exercises". More info here:

Reply With Quote
The Following 2 Users Say Thank You to Nakamova For This Useful Post:
Flynn's mum (09-27-2012), Janus (09-27-2012)
Old 09-26-2012, 09:26 PM
Weaving the Community Fabric
Join Date: Sep 2012
Posts: 119
Thanks: 59
Thanked 39 Times in 30 Posts

My son is 5 and he has been diagnosed with ADHD and also is getting weaned off keppra, god it really brought the aggression out in him it was actually one of the worst side effects I have seen in meds. He has been advised to go off his meds at 0.5ml a week and it has been only a few days and already I have noticed behaviour changes.

The type of epilepsy that my son has( tuberose sclerosis complex) has a large incidence of behavioural problems and my son definately has that!!

I hope that helps
Reply With Quote
The Following 2 Users Say Thank You to stacey For This Useful Post:
Flynn's mum (09-27-2012), Janus (09-27-2012)
Old 09-27-2012, 12:39 AM
New Here
Join Date: Sep 2012
Location: Christchurch, New Zealand
Posts: 3
Thanks: 2
Thanked 1 Time in 1 Post
Thanks for your replies. I don't know if we would have any provider of neurofeedback here (Christchurch, New Zealand). There really isn't much support at all. But I will look into it.
It's reassuring to hear that some of what we've been dealing with may go away. Our son has also been quite aggressive although he has recently learned to keep his rage under control (at least at school). Our son takes a 250mg tablet twice a day (the liquid is not available here) so the weaning off process won't be as gradual as we might like. Still, even though it's a bit scary, I'm very excited that we might get our little boy back.
Reply With Quote
Old 09-28-2012, 09:35 AM
Fedup's Avatar
CWE Supporter
Join Date: Jul 2012
Posts: 3,400
Thanks: 3,232
Thanked 3,134 Times in 1,819 Posts
Flynn's mum

I have grown up with epilepsy as many others. Coming of keppra or any medication is not easy. Your son being aggressive could be a side effect, ever hear of keppra rage. I heard all the stories of what I can and cannot do, about not being able to keep up at school all the rest. The thing is all of us are different and the only way you will get a truthful answer is when he is completely of all medication. Just because you are on medication does not make you less intelligent, and I would say there are a few here who can prove that. So the faulty wiring bit is true to an extent children are resilient , like I said we are all different. Wait and see is all you can do I think.
Reply With Quote
Old 10-02-2012, 06:07 PM
Esteemed Pillar of the Community
Join Date: Feb 2012
Location: Claremore, OK
Posts: 512
Thanks: 144
Thanked 145 Times in 118 Posts
flynn's mom, im weaning off of keppra right now is your son having any effects vomiting,extreme diziness?
Reply With Quote

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On

Similar Threads
Thread Thread Starter Forum Replies Last Post
KEPPRA XR vs LEVETIRACETAM ER sturg The Foyer 8 08-30-2012 01:57 PM
Keppra to generic levetiracetam Lily93 The Kitchen 6 08-12-2012 01:57 PM
Generic Keppra - Levetiracetam John Sturgis The Kitchen 4 08-24-2011 09:11 AM
Keppra / levetiracetam rhiz The Kitchen 22 12-20-2009 01:16 PM
Is there any difference between Keppra & Levetiracetam Nubbsy The Foyer 4 08-21-2009 03:45 PM

All times are GMT -5. The time now is 07:36 PM.

Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.