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I was 56 when I started having seizures and I'm 62 now. With medication the seizures are pretty much under control.My first that I am sure of was at 20. May have had some form of seizures already in my teens?? Now 49, How old are you now Dave?
No, I'm not sure what triggered my seizures. I knew something was going on before I had my first seizure, but didn't know what.I was 11 when I had my first seizure. I am 22 now and still have them occasionally. Yes, I think it is rare to start having seizures later in life. Do you know what triggered it for you?
No, the doctors haven't determined any specific cause for mine. During one episode while I was in the hospital the EEG showed I had epilepsy but I had three or four EEGs before that and nothing showed up. How did the doctors discover the cavernous malformation in your left temporal lobe?I had my first at 43. After the first one I started having plenty of them, regardless of which AED I took. The doctors subsequently discovered a cavernous malformation in my left temporal lobe which was causing the seizures. Apparently, its common for seizures to start later in life with this particular type of angioma. I had surgery in June 2010 to remove the malformation, and haven't had a seizure since then. I'm very grateful for that. I was happy to go a few days without one before. I'm also grateful I started having them later in life. There are plenty of people who developed epilepsy as children who have them the rest of their life. I only had them for 6 years, assuming my recovery is permanent.
Incidentally, have the docs determined any specific cause for your seizures?
Last year in June...out of nowhere, at age 40.
I have no family history, no cause has been found for them, etc.
I've also heard that later-in-life seizures are less common than earlier onset ones but it's not unheard of.
I was in a bad car accident when I was in my early 20s. I was unconscious and suffered a concussion. My doctor also said there's a good possiblilty that has something to do with my seizures, but he can't say for sure......I've had a lot of brain trauma throughout my life...somewhere around 6-8 concussions plus a car accident where all of the damage was to my head. Doc is pretty sure one of those is the guilty party. I have scars in my left temporal lobe which is what sets everything off......