Coping With Epilepsy The Hemispherectomy Foundation
Free Advertisement
 

Go Back   Epilepsy Forum > Our House > Back Fence



View Poll Results: How long have you had Epilepsy?
Since Birth 27 6.01%
Less than 1 year 41 9.13%
1-5 years 86 19.15%
6-10 years 52 11.58%
11-20 years 83 18.49%
21-30 years 63 14.03%
31-49 years 82 18.26%
50+ years 15 3.34%
Voters: 449. You may not vote on this poll

Reply
 
LinkBack Thread Tools
  #241  
Old 05-19-2014, 02:11 PM
Ruth's Avatar
Venerable Voice of CWE
 
Join Date: Oct 2008
Location: California
Posts: 3,025
Thanks: 2,166
Thanked 626 Times in 486 Posts
Originally Posted by Shelley View Post:
Me too. In a stuffy church, surrounded by tall adults.
I had my first one at home. Since it is hereditary in my family, it was a positive ID.
__________________
It is how we live in the present that determines how we live in the future. - quote unknown
Reply With Quote
  #242  
Old 05-20-2014, 05:55 PM
katzy's Avatar
Weaving the Community Fabric
 
Join Date: Aug 2012
Location: New York
Posts: 216
Thanks: 54
Thanked 56 Times in 49 Posts
mine is hereditary because one of my cousins has it. Mine started when I was 12, so that's like 8 years ago.
Reply With Quote
  #243  
Old 08-25-2015, 07:00 PM
Esteemed Pillar of the Community
 
Join Date: Jul 2015
Location: Auburn, NY
Posts: 604
Thanks: 47
Thanked 201 Times in 152 Posts
I've had epilepsy since I was 12 years old, roughly. One morning I woke up and felt like something weird was about to happen, and then I went status epilepticus and starting having focal seizures back to back nonstop until they put drugs in me. Since then, I've had seizures daily and been on depakote and keppra. Recently the focal seizures turned into generalized tonic clonic seizures and I've had to take my epilepsy a lot more seriously.
Reply With Quote
  #244  
Old 08-26-2015, 03:53 PM
Truesecurity30's Avatar
New Here
 
Join Date: Aug 2015
Posts: 4
Thanks: 5
Thanked 1 Time in 1 Post
I have had seizures since I was Second grade now 30, petite mild in and out of the hospital since I can remember it seems. I'm not driving after the freeway accident and working is hard at times. My kids are the best thing in my life, so I try to find the silver lining.

Sent from my Nexus 5 using Tapatalk
Reply With Quote
  #245  
Old 08-31-2015, 11:25 AM
Crash's Avatar
CWE Supporter/E Hater 2
 
Join Date: Mar 2011
Location: Scotland
Posts: 1,511
Thanks: 1,375
Thanked 1,056 Times in 641 Posts
I've had seizures for 22 years now,some brought on by my own stupidity others just seizures out off the blue.But there's nothing i can do but work around it and rely on my family an friends and off course CWE.
Reply With Quote
  #246  
Old 09-04-2015, 04:43 PM
New Here
 
Join Date: Sep 2015
Location: Ohio
Posts: 2
Thanks: 0
Thanked 0 Times in 0 Posts

Not sure what the answer really is


I was diagnosed with absence seizures when I was 11 (14 years ago). However, it had been happening for about 2 years before I was finally diagnosed. It went away when I turned 15 for 5 years. Clean EEGs and no meds. I had my first Tonic-Clonic when I was 20. I'm now 25. My seizures are now labeled "partial onset with secondary generalization." So what is the actual answer to your question?
Reply With Quote
  #247  
Old 09-20-2015, 04:13 AM
Jake's Avatar
Joined the Party
 
Join Date: Aug 2005
Location: California, USA
Posts: 87
Thanks: 79
Thanked 30 Times in 20 Posts
t
__________________

Carbatrol 1,000mg
Neurontin 3,600mg
Phenobarbital 120 mg

Last edited by Jake; 09-20-2015 at 04:16 AM.
Reply With Quote
  #248  
Old 10-11-2015, 01:53 PM
Zara-Newman's Avatar
Weaving the Community Fabric
 
Join Date: Sep 2013
Location: Wiltshire
Posts: 309
Thanks: 9
Thanked 44 Times in 37 Posts
I used to faint a lot at school, between the age of 13-16 - this have diagnosed this as postural tachycardia syndrome.
When I turned 16 I was attacked by a girl at school, I don't remember much about it except I was told I broke her nose - and then she picked me up by my throat (her being 6 foot and quite large, and me being 5 food and very small I couldn't do much to get free) and I lost consciousness.

After that my faints turned to seizures - it could be coincidental.
I am 22 now and still uncontrolled.

Sent from my SM-G920F using Tapatalk
Reply With Quote
  #249  
Old 10-18-2015, 08:58 PM
Esteemed Pillar of the Community
 
Join Date: Sep 2014
Posts: 679
Thanks: 264
Thanked 178 Times in 145 Posts
I'm at like 8-10 years now .

Time just flew by
Reply With Quote
  #250  
Old 03-09-2016, 09:09 AM
Weaving the Community Fabric
 
Join Date: Oct 2015
Location: Olney Maryland
Posts: 176
Thanks: 93
Thanked 53 Times in 49 Posts
I had my first seizure when I was around eight I am now fifty four it is possible the cause was being hit in the head by a golf club. I have had periods when I have been relatively seizure free but then they start up again for some reason.
Reply With Quote
  #251  
Old 10-02-2016, 08:24 PM
Sabbo's Avatar
Esteemed Pillar of the Community
 
Join Date: Feb 2016
Location: Tinley Park, IL
Posts: 693
Thanks: 17
Thanked 103 Times in 92 Posts
I'll say 40 years (since birth)

I've had Simple Partials since childhood. My Complex Partials (that I know of) began about 16 years ago--don't know if I have ever had any before then. I had 2 or 3 Tonic Clonics when I was 14--none since.
Reply With Quote
  #252  
Old 10-04-2016, 01:14 PM
Janus's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2012
Location: Olympia, Washington
Posts: 944
Thanks: 782
Thanked 398 Times in 289 Posts
Since I had a TBI. In 1986. Then I started complex partials but it got worse. In 2000 (the year) . Tonic clonic sometimes status. I am free of them for 3 weeks now. Scared of possible "break out" I think that's what you call it.
__________________
The purpose of life is to live it. People keep getting lost in trying to achieve something great and not living. -Alan Watts
Reply With Quote
  #253  
Old 12-18-2016, 11:03 PM
sp0ckward's Avatar
Getting Comfortable
 
Join Date: Oct 2016
Location: Seattle, WA
Posts: 22
Thanks: 0
Thanked 1 Time in 1 Post
"diagnosed" at 24, but I have had seizures since I was 7 (I'm adopted so it isn't clear if I've had these since I was born, but my assumption is 'yes' because when my parents adopted me, they were told multiple times that I was "retarded" - even by the judge. So I suspect that this time in Russia, they didn't understand the symptoms of epilepsy or seizures, and assumed it was part of, excuse the term: "retardation"). My diagnosis is very early because doctors wouldn't listen to me when I would correlate my symptoms to epilepsy until a female doctor was tired of me pushing the issue and referred me to a neurologist. Needless to say, doctors piss me off and I half-listen to them.
Reply With Quote
  #254  
Old 04-10-2018, 10:08 PM
Ravensong's Avatar
Weaving the Community Fabric
 
Join Date: Jun 2011
Location: Northern Kentucky
Posts: 104
Thanks: 49
Thanked 11 Times in 10 Posts
Send a message via AIM to Ravensong Send a message via Yahoo to Ravensong
I voted based on when I was diagnosed (31-49 years) but my neuros all have said they think I've had it since I was very young.
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Long term effects of dilantin RanMan The Library 24 05-21-2014 04:31 AM
Effects of long term use of the meds RanMan The Library 4 01-28-2006 11:21 AM


All times are GMT -5. The time now is 01:46 AM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.