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Old 02-22-2011, 05:30 AM
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21 Years Ago

I got pregnant 21 years ago. Beautiful pregnancy. Natural delivery. A gorgeous little boy with a head full of dark hair. The next morning, doctors told me something was wrong with my son. He was blue and pretty much unresponsive and couldn't breathe adequately unless held upright. Turns out he had hypoplastic left heart syndrome. Long story short. He lived three days. Needless to say, I was devastated. Took me two years to stop crying every single day and begin gathering myself out of a depression. Hardest thing a mother will ever go through is burying her child.

The doctors never admitted it and said it was just one of those things that happens but after my own internet research many years later, I suspect that my taking Dilantin was the cause.
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Old 02-22-2011, 05:37 AM
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Oh, my,

Mockinbird, I'm so sorry to hear that. There are no words to convey my belated condolences.........
"Twenty years from now you will be more disappointed by the things that you did not do than by the things that you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sail. Explore. Dream. Discover." Mark Twain
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Old 02-22-2011, 05:52 AM
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I didn't post for sorrow. Just want y'all to get to know me. I have a lot more that will come out sooner or later.

I was actually thinking when I posted that maybe some young woman with epilepsy who is planning to have children one day might read this and understand the importance of "planned parenthood" when taking anti-epileptic drugs. Very important!!!!!!!!!!
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Old 02-22-2011, 08:23 AM
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I'm sorry mockinbird, that's a tough memory.

I think that these days Dilantin is not recommended for people with seizure disorders who plan on getting pregnant. And you're right, careful planning (with an OB-GYN and neurologist working together) is ideal.
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Old 02-23-2011, 01:24 AM
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Oof. That's the kind of pain that just doesn't go away. I wish I could offer a hug (I'm not good at many things, but I'm probably one of the best huggers ever.)

They are serious drugs these anti-epileptic drug's. Certainly something that could easily be overlooked by any one of us. Thank you for sharing. Wishing you all the best.
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Old 02-23-2011, 05:17 AM
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I am so deeply sorry. You should have never have had to go through that.

Thank you so much for sharing that with us. There are lots of potential mothers in here, and now I think they will take their choice of anti-epileptic drugs even more seriously.
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Old 02-23-2011, 08:49 AM
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Condolences Mockingbird.
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
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Old 02-23-2011, 05:55 PM
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No one should have to go through that...I'm sorry
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