Coping With Epilepsy EEG Institute
10% off neurofeedback training for CWE members - Woodland Hills, CA
Neurofeedback Partner - Free Advertisement

Go Back   Epilepsy Forum > Peer Support > Surgery Central

LinkBack Thread Tools
Old 10-27-2018, 06:34 AM
Weaving the Community Fabric
Join Date: Feb 2014
Posts: 104
Thanks: 6
Thanked 17 Times in 13 Posts

AED after surgery

How long after ones had temporal lobectomy surgery would they normally be taken off their medication?

It's been around 1.5 years since surgery and I've gone without a seizure since, but I don't seem to be hearing from my consultant or anyone else from hospital about being taken off my medication!.
Reply With Quote
Old 10-27-2018, 09:55 AM
BIGMAN131307's Avatar
Venerable Voice of CWE
Join Date: Jul 2007
Location: NYS (Capital District Area)
Posts: 1,724
Thanks: 425
Thanked 388 Times in 273 Posts
There should be no rush to ween of anti-epileptic drug unless it is a health concern.

I'm currently past 53 months after my RTLS surgery. I still take the last anti-epileptic drug I was on prior to my surgery. In my mind I feel I should wait longer. Once I reach the point of seizure free passes the amount of years I was on anti-epileptic drugs before surgery, then I will consider weening.

I've been on anti-epileptic drugs for over 20yrs. So if I reach 20yrs, I will probably ween.

My current neurologist is not pushing me in either direction. It's my choice, when I'm ready to ween, I'll get the needed help to do it.
Member of the Epilepsy Foundation.
Undiagnosed sufferer of Dysgraphia.
LEGO County, NY Fire Service
RTLS went well 5 years down, life to go!, *Trileptal 900MG AM / 1200MG PM* (until I feel ready to reduce dosage once other issues are under control)
Reply With Quote
Old 10-27-2018, 12:17 PM
Porkette's Avatar
Venerable Voice of CWE
Join Date: Mar 2016
Location: New York
Posts: 1,398
Thanks: 353
Thanked 430 Times in 382 Posts
Hi Itr786,

I had the right temporal lobectomy done back in 1994 and I'm still taking meds but a lot less and the dosage is much lower. The reason why I still take meds is because the surgery reduced my seizures over 50% but even if they had stopped there was a chance of them starting again because I had more than one area triggering seizures. Don't be surprised if your Dr. wants you to stay on your seizure med for good. Iwish you the best of luck and May God Bless You!

Reply With Quote
Old 10-27-2018, 06:27 PM
CQ:)'s Avatar
Venerable Voice of CWE
Join Date: Aug 2007
Location: Aussieland
Posts: 3,821
Thanks: 1,855
Thanked 1,309 Times in 938 Posts
I had my surgery in 2011, when I had mine I was on Keppra & Tegretol and the goal was to get me on 1 medication. I had to be 12 months post surgery until I could discuss with my neurologist about coming of a medication.

We decided on Tegretol which we started reducing in 2012 but did it slowly & it took 12 months. I was completely of the Tegretol by April 2013 but a few months later i started having funny feelings which a video EEG later revealed to be focal seizures.

I went back on Tegretol & have had a few medication adjustments over the years to try to reduce the seizures. At the moment I'm on Keppra, Tegretol & Zonegran which is the best combination so far.
I know the meaning of LIFE ... Laughter Is Freaking Essential!

One small positive thought in the morning can change your whole day
Reply With Quote

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On

Similar Threads
Thread Thread Starter Forum Replies Last Post
Surgery Chris515 The Kitchen 17 02-14-2016 07:13 AM
surgery and seizures... generic surgery.. AndrewIrish The Kitchen 3 04-10-2014 05:55 PM
How does surgery ( not brain surgery) affect your seizures chmmr The Kitchen 7 12-22-2013 05:53 PM
Surgery? Mrs.Walker Lemonade Stand 2 02-25-2011 10:59 PM

All times are GMT -5. The time now is 06:50 PM.

Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.