lennox-gastaut

More: https://medcitynews.com/2024/01/epilepsy-drug-longboard-pharmaceuticals-clinical-trial-dravet-lennox-gastaut/

https://www.nytimes.com/2018/04/19/health/epidiolex-fda-cannabis-marajuana.html Here's an excerpt from the article:

Just published in the New England Journal of Medicine are the results of a study testing Cannabidiol in treatment of children with Dravet syndrome (a severe form of epilepsy): The drug manufacturer hopes that it can be available by prescription in 2018 for children suffering from Dravet...

I posted this link elsewhere, but I think it deserves its own thread: http://www.cureepilepsy.org/news/story.asp?id=97 The link is to a fascinating interview with a scientist/mother who through her own genetic sequencing research -- and with the crucial support of her daughter's pediatric...

My grandson has been dealing with epilepsy for almost 2 years, is regressing and now believed to have Lannox Gasteau Syndrom. I understand there isn't a lot of info on this. Is anyone familiar with this? He is in hopes to enter a study at Dartmouth with a new drug, we're hoping for some...

Six years after finding out my (now) 11-year-old grandson has epilepsy, we were just told he has Lennox-gastaut syndrome. Personal research had provided me with this diagnosis, but actually hearing it from his neurologist was devastating. I guess I'm looking for a glimmer of hope, and ideas...

Atonic [drop-attack] seizures are often synonymous with Lennox-Gastaut syndrome. They are one of the most devastating types of seizures associated with LGS and are caused by a sudden burst of electricity to the brain and loss of muscle tone, often resulting in a dangerous fall. Children are...

By Med-Page Today... FDA Approves Rufinamide for Severe Epilepsy

JUVENILE & MYOCLONIC SEIZURES AKA JME EPILEPSY including Lennox-Gastaut Here are some partial quotes: JME / MYOCOLINIC SEIZURES - from eMed MYOCLONIC SEIZURES - Epilepsy Foundation JME, MYOCLONIC, LENNOX-GASTAUT SEIZURES by Epilepsy.com Feel free to bring about any discussion as...

Hi Everyone, I am putting together a short informational video of kids and young adults with LGS. It will also be included in the documentary that we are producing. I am looking for everyone who has a loved one with LGS to submit photographs and videos of them. We are looking for the...

Hi there, Just wanted to introduce myself and our organization, the LGS Foundation (Lennox-Gastaut Syndrome Foundation). The LGS Foundation is an organization dedicated to raising awareness about the disorder, while offering support to individuals and their families who are battling with the...