1. Minkous

    Your thoughts..?? Myoclonus?

    Hey guys, I am posting because I feel like my peers on this forum may be of more help than my doctors have offered thus far. I am a 27 yr old male. From what we know I starte having seizures almost 2 years ago. I started having a tonic colonic every other month. Then randomly I had a day where...
  2. T

    new here

    :e::hello: hello everyone! i'm new here, i came across this forum on google at 6am. see, i suffer from insomnia as well as juvenile myoclonic epilepsy. i was diagnosed about 3years ago and although i've come to terms with the fact that i have epilepsy it's still very hard for me to deal with it...
  3. kristarenee

    After 9 Years

    My seizures started when I was 15 years old, since then, I've seen 4 different primary doctors, and 2 different neurologists, and yesterday, yesterday.. I was finally diagnosed. After 9 years I was finally diagnosed with Juvenile Myoclonic Epilepsy. After 9 years of ER visits, blood draws and...
  4. L

    Hi, I am new here and my son has just been diagnosed

    Hi everyone, my name is Lara and my son (31 months) was just diagnosed with myoclonic seizures this past weekend. Our journey began on Dec 26th with a tonic/clonic seizure that self resolved but was the scariest thing I have ever ever seen. We went to the ER, etc. We followed up with EEG 2...
  5. A

    Myoclonic Jerks during the day?

    Has anyone ever had Myoclonic jerks during the day? I've had them off and on for awhile now. Sometimes it'll be my leg once or twice, one time it'll be my arm and sometimes my fingers. I know this happens in sleep but during the day, wide awake? Weird.
  6. J

    Clonazepam and parents not understanding

    Hello, I am new here so this is my story in a short version. I got viral meningitis and then started having seizures and then got ammonia poisoning from depakote. My neurologist said that I have always had epilepsy, but the viral meningitis lowered my seizure thresh hold, thus causing the...
  7. A

    Myoclonic Seizures

    Who has myoclonic seizures at bedtime or any other time? I know it's normal to have some jerking when you start going to sleep but since my seizure January of 2011, I've been experiencing a lot more. Last night for example, I wasn't even drifting off and my leg jerked and I've had that happen to...
  8. P

    Hello! Just joined. A little about me...

    Hi there, Hope this finds everyone well. I am 33 yrs old and was diagnosed with Juvenile Myoclonic Ep when I was 16. I was put on Tegretol which was no use. I had a series of Tonic Clonic seizures over the next few years - mainly sleep-deprivation related. Several of them were in different...
  9. T

    Muscle Twitches or Seizures?

    Hello, In October I had brain surgery to remove a lesion on my right frontal lobe. The pathology results of the lesion were somewhat inconclusive and basically suggest a demylinating process. Prior to the surgery I was having seizures and that is how the lesion was found. I was put on Keppra...
  10. brain


    JUVENILE & MYOCLONIC SEIZURES AKA JME EPILEPSY including Lennox-Gastaut Here are some partial quotes: JME / MYOCOLINIC SEIZURES - from eMed MYOCLONIC SEIZURES - Epilepsy Foundation JME, MYOCLONIC, LENNOX-GASTAUT SEIZURES by Feel free to bring about any discussion as...
  11. RobinN

    Progressive Myclonic Epilepsy treated with NAC

    Looking at the role of magnesium and N-acetylcysteine in the reduction of seizures I found this: The finding of increased activity of the enzyme extracellular superoxide dismutase in four siblings with progressive myoclonus epilepsy of the Unverricht-Lundborg type (PME-UL) prompted the addition...
  12. H

    Very new with hard questions I can't handle

    Hi everyone. Since I don't quite know how to start, let me start like this: It's been two weeks since my wife took our 11 month old son (youngest of two) to the emergency room. And I still can't put words to the feelings that I've been through since. Me? Well, I'm just your not very average 38...
  13. residualvisuals


    Guess I should do a quick intro. I'm 22 years old, was diagnosed with epilepsy at 13 shortly after my first seizure and EEG. Was prescribed Tegretol, that made things worse, and went to a new neuro. He gave me a second opinion on the EEG and told me that I actually had juvenile myoclonic...
  14. C

    what is myoclonic sz.

    hi all what is an myoclonic sz. and what the simptoms take care cazzie
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