panayiotopoulos syndrome

  1. S

    I'm back....lots to tell

    Hi everyone. Wow it's been a REALLY long time since I've been here lots to update. In march Sasha went for her 5 day VEEG. They took her off meds, and on the 4th day she had a seizure. I woke up really early that morning (5:30) with this feeling that something was going to happen that day. I...
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