CJR
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On Feb. 25th 2008 my daughter got up to go to school like normal. I heard a thump from upstairs and called to her. She answered in her sing song voice saying that she was fine. 15 seconds later she fell in a full TC seizure. Her first. She went to the ER and they misdiagnosed her as having Vasovagal Syncope. I disagreed with their findings so I took her to her pediatrician who "respectfully disagreed" with their diagnosis. A week later she was in for an EEG. A week after that the results came back as highly abnormal. Another week before the Neurologist could consult on the case and a diagnosis of Generalized Epilepsy was given.
In the space of that time I've spent all my time researching Epilepsy. We have no family history (not that it matters now) and she's never had any truamatic brain injury. However, now I can see that she has been having absence seizures since...well, forever! But she is extremely smart and the teachers always said that really smart people often live "in their own space" so we we're never alerted by her behavior. In the past six months we've noticed odd things like hand and arm twitches (we said they were probably muscle spasms) and weak legs (we told her she probably was having low blood sugar~as that is very normal in our family). Hindsight being 20/20 we missed ALL the signs.
I have no idea what category these "odd" seizures fall in. Matter of fact I don't even really know what "Generalized Epilepsy" means. We live in a very small town and everyone knows everybody's business. So I'm dealing with people coming to me in every store saying, "Once she's on Meds she'll be fine. Don't worry." Yet when you read anything online the meds seem to take on a life of their own. I don't know what to think.
Anyways, that's our story. I really hope that I get to learn all of your stories as well.
In the space of that time I've spent all my time researching Epilepsy. We have no family history (not that it matters now) and she's never had any truamatic brain injury. However, now I can see that she has been having absence seizures since...well, forever! But she is extremely smart and the teachers always said that really smart people often live "in their own space" so we we're never alerted by her behavior. In the past six months we've noticed odd things like hand and arm twitches (we said they were probably muscle spasms) and weak legs (we told her she probably was having low blood sugar~as that is very normal in our family). Hindsight being 20/20 we missed ALL the signs.
I have no idea what category these "odd" seizures fall in. Matter of fact I don't even really know what "Generalized Epilepsy" means. We live in a very small town and everyone knows everybody's business. So I'm dealing with people coming to me in every store saying, "Once she's on Meds she'll be fine. Don't worry." Yet when you read anything online the meds seem to take on a life of their own. I don't know what to think.
Anyways, that's our story. I really hope that I get to learn all of your stories as well.