Hadley
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Hi CJR!! I too am the mother of a child with epilepsy. His started as an infant, but I too was unaware that he was actually seizing simply because the only seizures I was ever aware of were the grand mal that you see on TV. I had no clue that a little spaced out, lip smacking, right hand shaking, and confusion were actually a form of seizure. When he was 5, he was finally diagnosed and he experienced his last seizure on August 29th, 2002. We thought we were finished with this, and that we could look behind us and go "YES" we lived through it but do not have to face it again. Well, in January, my kids were staying the night with my mom and she called me the next morning saying that my son had done something "weird". I told her that I was sure he was fine but I would keep an eye on him. Well, about a month later, he had another one, this one my husband experienced. Then I went ahead and made him an appointment with the doctor to see what he had to say. He ordered an EEG and it came back normal. At that time, we opted to not put him on meds until 3 days later when he had a 15 minute grand mal. After calling the hysterically calling the doctor and my husband cussing out the 911 operator because they were taking too long, we opted to go ahead and put him on meds. Well, since then, he has had one every night, sometimes two a night, and they seem to be getting a little worse each time. He isn't having grand mals, let me clarify that, he is having partial seizures again.
CJR, I am with you on this one. It is the hardest, most helpless feeling in the world, watching your child go through this. It does get easier with time, well at least that is what you tell people. I don't think it ever gets easier, to be honest, watching your child seiz. My prayers are with you, as that is the only thing that has kept me going thus far. Take care!
Tina
CJR, I am with you on this one. It is the hardest, most helpless feeling in the world, watching your child go through this. It does get easier with time, well at least that is what you tell people. I don't think it ever gets easier, to be honest, watching your child seiz. My prayers are with you, as that is the only thing that has kept me going thus far. Take care!
Tina