Hi,
Have never used a forum b4 but thought it would be best place to get advice on how to control son's epilepsy. He had his 1st tonic clonic seisure age 11. After a few years, it was successfully controlled with Sodium valproate. Having been fit free for 3 years, he was taken off medication and told there was a 78% chance he'd be fit free for life. 8 months later he had another fit and then continued to have one every couple of weeks.
Between his seisures he had also started to have spasms causing him to drop or throw things. His diagnosis was changed to Juvenile myoclonic Epilepsy (I thi9nk thats the right one!)Neither of us wanted him to go back on the sodium valproate as it gave him the most awful wind!! The neurologist didn't seem to believe that was a side effect to the med - has anyone had the same? It's not just the embarrassment factor, I worry what harm it's doing to his digestive system if thats what it's producing. Anyway (excuse me for waffling!), he was put on lamotrogine. The fits have reduced now but not yet fully controlled. He's gonna be 18 this weekend and has booked a holiday to Ibiza with friends who have also just turned 18. He hopes to go to University next year though when he had frequent fits at the beginning of this year his grades have dropped. They have picked up now but he is still pretty scatty (takes after his mum).
We have a neurology appt next week. My son's now thinking he may want to go back on the Epilim if it's gonna control the epilepsy bu I'm worried bout the long term effects on his insides. Am I worrying needlessly? Would increasing the Lamotrogine be a good idea? Should we look at a different med altogether?
It's been good to get all that of my chest. He's next door now sleepin off his latest seisure. I'll try make any future messages shorter!!!!!!
Cheers,
Alison
Have never used a forum b4 but thought it would be best place to get advice on how to control son's epilepsy. He had his 1st tonic clonic seisure age 11. After a few years, it was successfully controlled with Sodium valproate. Having been fit free for 3 years, he was taken off medication and told there was a 78% chance he'd be fit free for life. 8 months later he had another fit and then continued to have one every couple of weeks.
Between his seisures he had also started to have spasms causing him to drop or throw things. His diagnosis was changed to Juvenile myoclonic Epilepsy (I thi9nk thats the right one!)Neither of us wanted him to go back on the sodium valproate as it gave him the most awful wind!! The neurologist didn't seem to believe that was a side effect to the med - has anyone had the same? It's not just the embarrassment factor, I worry what harm it's doing to his digestive system if thats what it's producing. Anyway (excuse me for waffling!), he was put on lamotrogine. The fits have reduced now but not yet fully controlled. He's gonna be 18 this weekend and has booked a holiday to Ibiza with friends who have also just turned 18. He hopes to go to University next year though when he had frequent fits at the beginning of this year his grades have dropped. They have picked up now but he is still pretty scatty (takes after his mum).
We have a neurology appt next week. My son's now thinking he may want to go back on the Epilim if it's gonna control the epilepsy bu I'm worried bout the long term effects on his insides. Am I worrying needlessly? Would increasing the Lamotrogine be a good idea? Should we look at a different med altogether?
It's been good to get all that of my chest. He's next door now sleepin off his latest seisure. I'll try make any future messages shorter!!!!!!
Cheers,
Alison