4 years old sister keeps having seizures

[MariaVar]

Hello everybody!

I have got a 4 years old sister who has got an epilepsy after having a meningitis.

She had a surgery a year ago in order to remove one of the areas where she had epilepsy (the area was already dead after meningitis). However, a year had passed but the seizures are still constant and would happen 1-6 times a day.

They are very short about 1-2 seconds but according to the doctors this stops her from developing because the brain never rests.

My parents and sister live in Spain and are not very happy with their current doctor.

Does anyone know a good Children hospital or a doctor in the UK (preferably) or the US?

Thank you very much for your help!

 

[Nakamova]

Hi MariaVar, welcome to CWE!

I am sorry to hear that your sister is continuing to have seizures.

Here are places hospitals/doctors to consider:
In the the U.S.:
http://epilepsy.med.nyu.edu/for-pediatric-patients
http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/pediatric-neurology/
Plus this state-by-state list:
http://www.epilepsywarriors.org/epi...doctor/pediatric-neurologistsepileptologists/

Not sure about options in the UK, but you could start here:
http://www.ucl.ac.uk/ion/nationalhospital/NHNN_BROCHURE_FINAL_MAY_2011.pdf

Best,
Nakamova

 

[giveasmile]

I'm sorry that I don't know anyone to recommend but I hope someone on the above lists will work. Your sister is lucky to have you as an ally. I hope she finds a great doctor.