A boyfriend to gently hold me when I have a seizure

[Janellie8]

Hello!!!

This is what I want: I want a boyfriend. A boyfriend that will gently hold me while I have a seizure. A boyfriend that will catch me when I fall because of a seizure. A Boyfriend that will sleep on the edge of my bed so when I have seizures at night I wont fall off. I want a boyfriend to listen to me and understand what I am going through. A boyfriend to hold me at night when the seizures wont stop. A boyfriend to hold my hand when I have an aura. A boyfriend to come to my appointments with me. Is this too good to be true? Do any of you guys have relationships like this?

Janellie

 

[cadsgj]

Well... no. There are some days when my wife does not believe I actually had or am having a seizure. She does not understand just why I don't remember this or that. To some extent I understand as my seizures are not like the norm one may hear or read about; but then just who's seizures are? And via memory, who does not hear of others who "have the same memory problems, and they don't have seizures?"

So I guess being one who has seizures, I could not be one of the guys who has relationships as mentioned... sure wish I could be though.

 

[rich956]

Good Topic there.
many years ago I met my now late wife Kathleen.
She was in the same class at the collage we both went to.
One day when class was over I heard a crowd yelling outside.
Just out of the ARMY I took charge of the problem.She was on the ground
having a grand-mal.thats how we met.And the rest is history. Over the years a lot understanding evolved.ten years marriage , a healthy son .
I wish you the best of luck in finding a partner that can be by your side in the time need. Cheers !

 

[N Sperlo]

Damn, you're klingy Janellie!

My wife and I are the same way. We are there for each other. It has been a few years since I had my first tonic clonic, but she was freaked out. She was there crying when I came to. The next one, she flipped me on my side and held me lightly. She can tell when something is happening. She has been there through my night time simple partials when I would unknowingly kick, punch, and slap her in bed. When I had a simple partial in the car, she took the keys, turned the car around and sang with me so I would be comfortable, then she made me take a nap on the couch.

I have tried to be a source of comfort and someone to lean on as she goes through the process and getting settled in her treatment for bipolar disorder.

If you want to find that guy, stop looking because they will fall in your lap.

 

[Janellie8]

Well... no. There are some days when my wife does not believe I actually had or am having a seizure. She does not understand just why I don't remember this or that. To some extent I understand as my seizures are not like the norm one may hear or read about; but then just who's seizures are? And via memory, who does not hear of others who "have the same memory problems, and they don't have seizures?"

So I guess being one who has seizures, I could not be one of the guys who has relationships as mentioned... sure wish I could be though.

cadsgj,

I hope your wife believes that you had a seizure if you know you did, that would be so much support for you! Best of luck to you!

Hugs,
Janellie

 

[Janellie8]

Good Topic there.
many years ago I met my now late wife Kathleen.
She was in the same class at the collage we both went to.
One day when class was over I heard a crowd yelling outside.
Just out of the ARMY I took charge of the problem.She was on the ground
having a grand-mal.thats how we met.And the rest is history. Over the years a lot understanding evolved.ten years marriage , a healthy son .
I wish you the best of luck in finding a partner that can be by your side in the time need. Cheers !

rich956,

I'm a real sucker for romance stuff and this is just amazing I wish one day I can find someone that can be at my side like that. You are wonderful!!!

Hugs,
Janellie

 

[Janellie8]

Damn, you're klingy Janellie!

My wife and I are the same way. We are there for each other. It has been a few years since I had my first tonic clonic, but she was freaked out. She was there crying when I came to. The next one, she flipped me on my side and held me lightly. She can tell when something is happening. She has been there through my night time simple partials when I would unknowingly kick, punch, and slap her in bed. When I had a simple partial in the car, she took the keys, turned the car around and sang with me so I would be comfortable, then she made me take a nap on the couch.

I have tried to be a source of comfort and someone to lean on as she goes through the process and getting settled in her treatment for bipolar disorder.

If you want to find that guy, stop looking because they will fall in your lap.

N Sperlo,

Oh my gosh! I don't know whether to be offended or just laugh about being called "klingy." Hahah :roflmao: I know you mean more good than harm Anyways, I have never had a boyfriend before so I wouldn't know what to do with them. I am just hoping that they understand me and not judge me. I think that is so sweet how she sang with you to make you feel comfortable ... Yeah I am a real shy person when it comes to boys... but for now I will take your advice and stop looking

Hugs,
Janellie

 

[cadsgj]

cadsgj,

I hope your wife believes that you had a seizure if you know you did, that would be so much support for you! Best of luck to you!

Unfortunately, no my wife quite often thinks i did not have a seizure when I have them in front of her. Mine (most) are the type where I do not move too very much, rather I mostly freeze and in my mind and eyes I leave this actual world, yet get to look back in - well that how I see it all and my wife reading about seizures does not read them like this. Thank goodness my neurologist sees that I have seizures. But then he has MRI's and EEG's in addition to what we talk about :lol:

Best of luck to you!

Thanks, and I do wish the best for you as well!

 

[2ndchances]

With the good comes the bad. I met my husband 8 years after my first surgery. Seizures were no longer a part of my life, so they were never a part of our life.

In 2011, my seizures suddenly came back, with him sitting beside me on the couch (a rare time that he was home during the week, in the middle of the day). It was heartbreaking, and a shock to both of us to say the least.

We've had our fights, and are going through a rough patch right now, but I will say, that for the most part, he's been amazing with regards to my epilepsy, even with its return. He acted swiftly with the first few to get them on video to be able to show my doctors, and my mom, to see if they were the same as in years past. I firmly believe that this helped everyone, a lot.

He stood by my side as we made the choice to have a second surgery. My first memory of opening my eyes, he stood there with my son. My son stroked my cheek, and my husband spoke first, saying "You're beautiful, I like your hat" as he pointed to the bandage wrapped around my head. :roflmao:

Keep up your positive spirit, and keep smiling like you are in your profile. You'll meet Mr. Right when you least expect it.

 

[Belinda5000]

I met my husband 23 yrs ago been married 20. He's never questioned me when I've told him I've had a seizure. He use to have seizures.

My husband has been there for me everytime I've needed support.
I met him at a support group meeting.He's there when I'm seizing like crazy and in the hospital.He's never told me I shouldn't live my life.I wore a helmet for quite awhile once.

He was there for my VNS surgery never told me what I should do always left it up to me.He's my :rock:

 

[masterjen]

Sometimes it would be nice, but I have been independent far too long to want someone so close by all the time!! Well, if he would do the cooking and cleaning all the time I might reconsider lol!!

 

[AlexC]

I feel this every day. I just want a partner who will hold me, cuddle, tell me everything will be fine, will not be judging of my postictal mind and habits. *sighs* I've often wondered about dating only people with E so that I know that they understand what I'm going through. I dunno. Just thinking out loud.