AndrewIrish
Stalwart
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Hey all, this was taken some time ago but it exhibits a couple of the jerks I have. This is acxtually a more minor time of it happening but you'll see me bristle and move when it happens. I just was wondering, is this what they call 'Action myoclonus'? Is it myoclonus at all? Any thoughts? These jerks are the ones I refer to as having gotten stronger then this since I went status last week... I'm also unusual as I understand in that my jerks are consistent, happen probably a couple hundred times a day, all throughout the day... I've tossed all manner of objects, fallen down from the jerks, hurled myself into walls.... and it's just getting stronger and worse now. I'd do a trade off of having a tonic clonic once a month and no jerks it's so bad for me, I really would.
Mine are triggered by visual stimulus and responding to it - so essentially, doing anything that requires hand-eye coordination. I can't write much at all - more then a couple sentences and I'm jerking all over the place anymore and tonight, 3 hours from now, I start a new job doing mail sorting in a warehouse and I'm concerned with their cement floors, be working on an assembly line, I'm gonna jerk and hurt myself or jerk so much I'm launched into another TC and smack my head on concrete... arggh....
It's just, after this recent TC, my 5th or 6th, it's really starting to sink in for me now... yea, I have epilepsy... and yea, depending on whenever my next TC strikes, it could kill me. I could be driving, cutting up veggies for dinner, walking outside, drop and smack my head against something solid and seeya later folks... it's like I'm now realizing, I have a real, tangible threat against me and I don't know when it'll strike next. I'm a natural worrier but... this is real, isn't it? After my first couple TC's, I was just like... 'I'll probably never have another...'', and now I'm realizing, 'Yea, I'll probably have another...' and it's not the ones I've had, it's the next one that I have that worries me and where I am and when I am, when it happens. I cracked my head on my fridge this last time and fell on my kitchen floor... if it happened outside, I'm a big guy, I coulda hit the road and caused untold damage to myself. Aggh... this really sucks.
Also - ignore my eye, at the time I'd had a stye in it.
Mine are triggered by visual stimulus and responding to it - so essentially, doing anything that requires hand-eye coordination. I can't write much at all - more then a couple sentences and I'm jerking all over the place anymore and tonight, 3 hours from now, I start a new job doing mail sorting in a warehouse and I'm concerned with their cement floors, be working on an assembly line, I'm gonna jerk and hurt myself or jerk so much I'm launched into another TC and smack my head on concrete... arggh....
It's just, after this recent TC, my 5th or 6th, it's really starting to sink in for me now... yea, I have epilepsy... and yea, depending on whenever my next TC strikes, it could kill me. I could be driving, cutting up veggies for dinner, walking outside, drop and smack my head against something solid and seeya later folks... it's like I'm now realizing, I have a real, tangible threat against me and I don't know when it'll strike next. I'm a natural worrier but... this is real, isn't it? After my first couple TC's, I was just like... 'I'll probably never have another...'', and now I'm realizing, 'Yea, I'll probably have another...' and it's not the ones I've had, it's the next one that I have that worries me and where I am and when I am, when it happens. I cracked my head on my fridge this last time and fell on my kitchen floor... if it happened outside, I'm a big guy, I coulda hit the road and caused untold damage to myself. Aggh... this really sucks.
Also - ignore my eye, at the time I'd had a stye in it.
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