seizures4ever
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I went to see the Epileptologist this Wednesday. He was nice enough.
Although, "silently condescending," if you know what I mean. In other words, he never said anything patronizing directly to me. But when I told him that, if I feel a seizure coming on, I do a mental check of my pulse, blood-pressure, and environment to see if I can possibly stop my seizure, he just gave me a cocky "isn't that cute" kind of half-smile.
I got the same response when I mentioned neurofeedback.
To my amazement though, he suggested natural progesterone as a possible treatment if my neurologist determined it may be helpful. He said not to use synthetic progesterone.
Of course, he gave me a run down of all the medications to try and all the brain stimulators that are on the horizon.
He seemed to be a nice-enough man, and a knowledgable doctor. I was just let down that I walked away with no real info. that I didn't already know. He wouldn't change my medication, and he didn't change the settings on my VNS because "they are already at the highest levels on both strength and frequency."
The drive to his office was over two hours. It sure was a disappointment to go so far to get nothing new accomplished. Of course, aside from waving a magic wand, I suppose there wasn't a whole lot he could do for me in a one hour visit.
I've had six c-p's and one "status" s-p seizure this week, along with my steady stream of daily s-p's...plus two migraines. Maybe I am just grasping at straws at this point. :agree:
Love you all. -Julie :e:
Although, "silently condescending," if you know what I mean. In other words, he never said anything patronizing directly to me. But when I told him that, if I feel a seizure coming on, I do a mental check of my pulse, blood-pressure, and environment to see if I can possibly stop my seizure, he just gave me a cocky "isn't that cute" kind of half-smile.
I got the same response when I mentioned neurofeedback.
To my amazement though, he suggested natural progesterone as a possible treatment if my neurologist determined it may be helpful. He said not to use synthetic progesterone.
Of course, he gave me a run down of all the medications to try and all the brain stimulators that are on the horizon.
He seemed to be a nice-enough man, and a knowledgable doctor. I was just let down that I walked away with no real info. that I didn't already know. He wouldn't change my medication, and he didn't change the settings on my VNS because "they are already at the highest levels on both strength and frequency."
The drive to his office was over two hours. It sure was a disappointment to go so far to get nothing new accomplished. Of course, aside from waving a magic wand, I suppose there wasn't a whole lot he could do for me in a one hour visit.
I've had six c-p's and one "status" s-p seizure this week, along with my steady stream of daily s-p's...plus two migraines. Maybe I am just grasping at straws at this point. :agree:
Love you all. -Julie :e:
Because of our PM's, and your posts, I've been doing the research on what I'm learning from you all. So, when he mentioned it, I was able to say, "yes sir, I've heard of that...I will definitely bring it up with my neurologist!" :agree:
