??? about my EEG

[Birdbomb]

Saw my new neuro yesterday. He took a great deal of time going over my medical history and history of my seizures. I find it funny that he wants all this detail about an event I have no memory of. Good thing I quizzed the girls about it.

One thing he did notice was a slowing of the brain waves of the left temporal lobe. Now what the heck does that mean? We were discussing several things and I forgot to ask him. Since the seizure I've had a ton of speech and communication problems but don't know if it's from that or the dilantin. And of course my vision is always affected, can't leave the eyeballs out!

My Rheumy noticed several months ago the right side of my body had a noticed reduction in it's reflexes and now I have problems with my fingers on the left.

Guess I'm falling apart. Wonder if I can get a trade in?

 

[Nakamova]

Basically, the slow waves are the kind of waves you'd have all over the brain if you were asleep, but since they're happening in one small area even when you're awake, that's what makes them abnormal, and an indicator for epilepsy.

 

[dfwtexas]

I always find it strange when my neuro asks my to describe my seizures when I told him, I am not at home when it happens! LOL I do find it frustrating that I can't remember anything about what happens during a seizure. When I asked him about memory, word problems...he says that it is more likely, in his opinion is the result of a seizure, but he said that answer can vary from doctor to doctor. I try to keep a on going list of questions for him in my purse, that way I always have it to add something to it and will have it for my next appointment

 

[Crystal11]

I like to ask lots of questions of my neurologist, especially things I don't understand.
Last time we discussed possible brain surgery since I'm now medically refractory. I also take questions, my med list, and seizure diary with me. I also take a friend with me who witnesses my seizures and also helps out.
Most of the times I just say: "I only had one or two little ones." and come to find out its more like 4-5 smaller ones and 1-2 longer complex partial seizures in one month or bad month rather. I don't remember what goes on during mine but I think I'm aware but really I'm not.
I pick at things or keep doing things over and over- but when the seizure is over, it seems like I'm just getting started on what it was I'm doing.

The only thing I can tell my doctor is how I feel before and after. I get an aura and he also asked me to describe it. I feel silly having to try and figure the best and most accurate description.
All I could come up with is "its similar to becoming fearful of someone coming for you and you can't get away. It comes very fast, and I usually cannot speak much.

Its even hard to describe it now...

The more we can provide from ourselves or a friend/family member, the better the doctor can help out. Even a regular family doctor or other type specialist.
I try to be observant as possible and take notes whenever possible.

My Twin sis and my friend have Epilepsy as well. So a household of people with Epilepsy makes us a little on edge, but taking notes, helping eachother and of course, reminding eachother about meds is something we have to learn to get used to.

Take care everyone
Crystal

 

[Birdbomb]

Since my husband has dementia and is pretty useless in the support department, my son went with me. He also witnessed the last part of the seizure. My first one was 9 years ago and I had been seizure free for the past 5 years.

I usually have a huge list of questions for my doctors but this time it was me being questioned. My last few EEGs were normal but a few had some spikes in the LTL.

This is the first I have ever heard of slow waves, it could have been there all along but never mentioned, I just don't know.

Well, one good thing is I'm not photosensitive! WOOT! :woot:

 

[Bernard]

In September, 2007, Stacy had a QEEG done. Dr. White said that she didn't understand how Stacy did anything because her brainwave patterns were basically the same as someone who was asleep.