I have asked some variations on this question before, so I apologize if it seems I am being repetitve. I am still trying to understand some issues regarding my children and their seizures.
Both of my children have nocturnal seizures that are not controlled by medication. My infant takes 1,000 mg of Keppra per day, while my teen (age 18 ) takes a whole bunch of stuff (Keppra, Lamictal, Valproic Acid, plus an anti-depressant due to issues with OCD).
The Keppra has helped my infant a little but he is at a maximum dose now and still has seizures while asleep. They are "minor" compared to what he used to experience. Basically all the seizure activity seems to be in his hands. Should I just accept that he has these "minor" seizures and let it be, or should I seek more aggressive treatment for him? I am unhappy and hestitant about the idea of him taking more medication. So far, he is not having any troubles due to Keppra, and I would hate to start a new medication that is going to affect his liver or give him other troubles. In other words, is it okay to have these kinds of seizures every night?
Regarding my older son, the cocktail of meds he is taking is taking a toll on him. He is tired all the time. He can't focus or concentrate, and we just went through a bad month with him vomiting and getting dizzy. Besides this, his seizures actually seem to be worse rather than better. I can't help but wonder if he would do better taking no meds. I mean, if he is having seizures anyway, what is the point of taking all this medication? Again, the seizures only happen when he is asleep. Is this something that *must* be controlled?
Is there any light at the end of this road?
How long does it typically take for people to find the right combination of meds to stop their seizures?
It's been about a year for my teen, and it has been very frustrating.
Both of my children have nocturnal seizures that are not controlled by medication. My infant takes 1,000 mg of Keppra per day, while my teen (age 18 ) takes a whole bunch of stuff (Keppra, Lamictal, Valproic Acid, plus an anti-depressant due to issues with OCD).
The Keppra has helped my infant a little but he is at a maximum dose now and still has seizures while asleep. They are "minor" compared to what he used to experience. Basically all the seizure activity seems to be in his hands. Should I just accept that he has these "minor" seizures and let it be, or should I seek more aggressive treatment for him? I am unhappy and hestitant about the idea of him taking more medication. So far, he is not having any troubles due to Keppra, and I would hate to start a new medication that is going to affect his liver or give him other troubles. In other words, is it okay to have these kinds of seizures every night?
Regarding my older son, the cocktail of meds he is taking is taking a toll on him. He is tired all the time. He can't focus or concentrate, and we just went through a bad month with him vomiting and getting dizzy. Besides this, his seizures actually seem to be worse rather than better. I can't help but wonder if he would do better taking no meds. I mean, if he is having seizures anyway, what is the point of taking all this medication? Again, the seizures only happen when he is asleep. Is this something that *must* be controlled?
Is there any light at the end of this road?
How long does it typically take for people to find the right combination of meds to stop their seizures?
It's been about a year for my teen, and it has been very frustrating.