Advice for someone newly diagnosed

[ehinOWHEN]

If you could give one piece of advice to someone who’s just been diagnosed with epilepsy, what would it be? Whether it’s about handling the emotional impact, managing medication, or navigating daily life, I’m sure your individual insights could be really helpful to those just starting this journey.

For me, I’d say it’s important to take things one step at a time and find a support system, whether it’s friends or communities like this one. It’s okay to feel overwhelmed, but you don’t have to go through it alone.

Looking forward to your thoughts.

—Owhen

 

[gina19]

Don't feel you're letting anyone down or causing anyone issues.

What ever it is can wait. You're always gonna have time to get back to it
Health comes first

 

[Porkette]

Don't let the epilepsy run you down and be open to others about it so they understand it.
Also get a DNA test done to find the best seizure med with the least side effects instead
of trying med after med.

Wishing you the best of luck and May God Bless You,

Sue

 

[Sabbo]

Don't let anyone act like or tell you that you can affect how often or severe your seizures are. (I've actually had people suggest that I could affect how often I'd have them). Keeping a record of the seizures you have will help you. I have a notebook in which I record the date, time, & length of the seizure. If it was a complex partial, I ask those who witnessed it when it started, and what I did.