Kaityokaina
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I had a tonic clonic seizure August 3. I’ve been trying to piece my life together since.
I was alone with my 6 yr old daughter when it happened. She called my partner who then called an ambulance. I had seized for over 20 minutes before they arrived!
I remember almost nothing. I woke up to my mom sitting in my rocking chair and I remember thinking “what the fuck?”(she lives 3 hrs away) My whole body ached, my tongue was so swollen I could barely talk, and I was exhausted and confused.
But I barely remember the weeks before my seizure or the week after. Is this normal to have such a HUGE gap in memory???Apparently I’d gone fishing with a friend and my family the week after, and I can’t recall a second of it.
I had a CT, EEG, and MRI. All were normal.
On Sunday Aug 22 I was making lunch for my daughter while I visited my mother. I felt kind of weird but put it off, thinking I was just being paranoid. But just looking at my own arms felt weird. I can’t explain it. It’s like, usually you’re not very aware of how your own body looks while you’re going through your day, but for some reason my own body just felt so unusually obvious and noticeable. Again, I was like “oh, it’s ok. I’m just paranoid” My mom came into the kitchen and I was talking with her but words were hard to find and they felt thick on my tongue when I spoke. Then my heart started racing and my body felt kind of light and tingly and so I said “I feel kind of weird”
I walked into the living room and immediately had to sit on the floor. My body felt so heavy I had to lay down. My mom came up to me and rubbed my back, telling me I was ok. All of a sudden I felt like I was falling and there was nothing to catch me, I couldn’t stop falling, and I whimpered “Oohh mommmy” And I thought it was coming. I was sure I was going to have another seizure. But in a minute or 2 it just passed.
I was completely conscious the whole time. But words just felt slow and difficult a few minutes before and after I had had to lay down.
Was this another seizure?!? What happened?!? I have not quite felt the same since even right before I had that prolonged tonic clonic seizure on Aug 3!
What is wrong with me? Am I ever going to feel ok again? I’m trying to keep my shit together, but inside I’m a mess. I’m just so scared and confused. Any advice on how to cope?
(I finally get to meet a neurologist on September 10. Desperately hoping for answers.)
I was alone with my 6 yr old daughter when it happened. She called my partner who then called an ambulance. I had seized for over 20 minutes before they arrived!
I remember almost nothing. I woke up to my mom sitting in my rocking chair and I remember thinking “what the fuck?”(she lives 3 hrs away) My whole body ached, my tongue was so swollen I could barely talk, and I was exhausted and confused.
But I barely remember the weeks before my seizure or the week after. Is this normal to have such a HUGE gap in memory???Apparently I’d gone fishing with a friend and my family the week after, and I can’t recall a second of it.
I had a CT, EEG, and MRI. All were normal.
On Sunday Aug 22 I was making lunch for my daughter while I visited my mother. I felt kind of weird but put it off, thinking I was just being paranoid. But just looking at my own arms felt weird. I can’t explain it. It’s like, usually you’re not very aware of how your own body looks while you’re going through your day, but for some reason my own body just felt so unusually obvious and noticeable. Again, I was like “oh, it’s ok. I’m just paranoid” My mom came into the kitchen and I was talking with her but words were hard to find and they felt thick on my tongue when I spoke. Then my heart started racing and my body felt kind of light and tingly and so I said “I feel kind of weird”
I walked into the living room and immediately had to sit on the floor. My body felt so heavy I had to lay down. My mom came up to me and rubbed my back, telling me I was ok. All of a sudden I felt like I was falling and there was nothing to catch me, I couldn’t stop falling, and I whimpered “Oohh mommmy” And I thought it was coming. I was sure I was going to have another seizure. But in a minute or 2 it just passed.
I was completely conscious the whole time. But words just felt slow and difficult a few minutes before and after I had had to lay down.
Was this another seizure?!? What happened?!? I have not quite felt the same since even right before I had that prolonged tonic clonic seizure on Aug 3!
What is wrong with me? Am I ever going to feel ok again? I’m trying to keep my shit together, but inside I’m a mess. I’m just so scared and confused. Any advice on how to cope?
(I finally get to meet a neurologist on September 10. Desperately hoping for answers.)