Allantoin?

[aaron]

Hi there,

I just heard from my girlfriend in hospital and she mentioned they are putting her on Allantoin?

She is still a big foggy in the head so she may have got the name wrong but does this mean anything to anyone?

Cheers

 

[Nakamova]

Maybe it was Dilantin? Dilantin is an anti-epileptic med often prescribed in the hospital/ER. It's been around for over a century, it's cheap, and you can ramp up to a working dose very quickly. Long-term it can sometimes effect the gums and bones, so at some point your girlfriend may need to change to a different med.

It was the first med I was put on. Once they found they right dose (I was overmedicated at first), I had no real problems with it other than a little fatigue. After a few years, it did start to affect my gums, so I switched to other meds.

 

[aaron]

Hi Nakamova,

I think it was Dilantin they were administering via IV when I visited yesterday morning.....

I just spoke to her again and her mind is still all messed up. It's never gone on this long before. It's scary.

I've read worse stories here but for her this is unusual.

I'll be heading up to the hospital in a couple of hours and hopefully will catch her doctor to get some info. I sure as hell hope they don't rely on her to be able to retain any information they are giving her at the moment.

 

[Nakamova]

Yes, she could definitely use you to help keep track of what's going on. She had a lot of seizures in a relatively short period of time, and it will take her brain and body a while to recover. I hope you both feel better soon.

 

[aaron]

Well that hospital visit has destroyed me

Kate thinks she's at a job that she did 6 years ago. Was repeating the same questions over and over. She thought her birthday was coming up but it was at the start of April. She didn't remember going down to visit her mum 2 weeks ago.

I'm trying to keep telling myself this is normal after what she has gone through but I feel terrible.

I feel so guilty and useless that I couldn't stay for more than 20 minutes talking to her because I was losing it seeing her like this. I just couldn't!

I'm sitting here crying when I need to be the strong one yet I left because I couldn't handle it.

The way her mind is at the moment, she was fine with me leaving and she isn't upset about anything at all.

I am so far from being a strong boyfriend at the moment.

Guilty guilty guilty.

I have my mum coming over in a few hours so I will have someone to talk to about it all. I really just feel I need someone to tell me that it will be fine (which I know it will be) and tell me I wasn't a selfish bastard for not staying longer.

Life huh.....

 

[Nakamova]

It will be fine. She will recover, and you will too. It's great that she's stable right now, and basically feeling okay. Now you need to take care of yourself so that you can be strong for her when she comes home.

 

[LJ-Bain]

You are NOT a selfish bastard. She is so lucky to have you standing by her side and loving her unconditionally.
She is exactly where she needs to be right now to recover. When she is feeling better she is going to need you to be there to hold her hand. And you will be.
I hope that having your mum coming to visit helped a little.
Epilepsy is hell for the person experiencing it but it also is hell for those who love them.
Thank you for posting and reminding me that I should give my husband a big hug tonight.
I hope today is a better day and that she continues to be stable and gather her memories.
I hope you're ok too.

 

[aaron]

Thanks for the replies guys.

I kind of lost it a little yesterday as you can see. Everything just got on top of me and it got the better of me.

I'm feeling much better today and much more capable of handling things. We all have our weak moments huh

I've just spoken to Kate again and thank god she is sounding much better. She knows where she is and why. By the sounds of things, when I visit her in a few hours it should be much better than yesterday.

I always knew she would be fine and this is all part of the process after having such severe episodes but sometimes no matter how much you tell yourself that, until you see progress it means nothing.

I think I built myself up before even visiting yesterday so I was half way to losing it before even walking into the hospital.

My parents stayed the night and were a much needed distraction for a few hours. My girlfriends mum will be arriving tomorrow as well so that will be great.

Again, thanks for the replies. A little reassurance goes a long way.

Cheers

 

[MaryK]

Aaron; I am glad Kate is sounding better. She is fortunate to have you and it sounds like you have pretty special parents since they were there for you and spent the night.

I am with LJ... gonna give my husband an extra hug tonight too.

Take care Aaron. I am sure each day will be a little bit better for Kate and you.

MaryK