Ash
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Hi all,
After using this site for a few months now I thought I would introduce myself and say hello, and basically have a good rant cause I get very frustrated with all this sometimes.
I had been having 'wierd' things happening for a few years. Dizzyness, forgetfulness, floor suddenly becoming wobbly, left side numbness, very sureal daja vu....the list went on. I thought it was all in my head, as it were, and there was nothing wrong with me. I ended up having several big siezures, including one at work, I had a few trips to the hospital, including a four day visit. Never had any head scans or anything, I was just told my life was quite stressful.
Anyway I ended up moving to germany (thought the change would do me good) from the UK 13 months ago and after having a few more seizures I was sent to several different brain doctors and had several different scans.
I was told I had AVM's in my brain and a stroke was imminent, the probable outcome being paralysis and/or blindness or death. I was told I needed surgery. To say I was a bit shocked was an understatement. Anyway after more tests, MRI etc.... It turned out that I have had a brain hemmorage at some point in my life though the doctors have no idea when. I also have a hole in the left side of my brain. Apparently the brain bleeds may have cured the AVM's but the doc's are not sure.
I now am on anti seizure meds, im getting fat, im exceedingly tired all the time, and the forgetfulness and vaugness are very frustrating. (Hell of a lot better than the seizures though) Im about to try a different meds next week, so maybe that will help.
Anyway, it feels good to write on a forum for 'like minded' people.
All the best
Ash
After using this site for a few months now I thought I would introduce myself and say hello, and basically have a good rant cause I get very frustrated with all this sometimes.

I had been having 'wierd' things happening for a few years. Dizzyness, forgetfulness, floor suddenly becoming wobbly, left side numbness, very sureal daja vu....the list went on. I thought it was all in my head, as it were, and there was nothing wrong with me. I ended up having several big siezures, including one at work, I had a few trips to the hospital, including a four day visit. Never had any head scans or anything, I was just told my life was quite stressful.
Anyway I ended up moving to germany (thought the change would do me good) from the UK 13 months ago and after having a few more seizures I was sent to several different brain doctors and had several different scans.
I was told I had AVM's in my brain and a stroke was imminent, the probable outcome being paralysis and/or blindness or death. I was told I needed surgery. To say I was a bit shocked was an understatement. Anyway after more tests, MRI etc.... It turned out that I have had a brain hemmorage at some point in my life though the doctors have no idea when. I also have a hole in the left side of my brain. Apparently the brain bleeds may have cured the AVM's but the doc's are not sure.
I now am on anti seizure meds, im getting fat, im exceedingly tired all the time, and the forgetfulness and vaugness are very frustrating. (Hell of a lot better than the seizures though) Im about to try a different meds next week, so maybe that will help.
Anyway, it feels good to write on a forum for 'like minded' people.
All the best
Ash