My name is Megan and my 22 yr old was diagnosed with Temporal Lobe Epilepsy after getting into a car accident with his younger brothers. Ove the past 16 months since the first one that we are aware of he has had many different types of seizures, all of which one of his younger brothers has been around to see. I had only witnessed the mild ones where he is awake, but not alert fully and does this clacking thing with his mouth and hands. As I have been informed by his Doctor what he thought were panic/anxiety attacks are actually types of seizure as well as a higher incidence of deju vu and short term memory issues. Well today I saw my first gran mal and needless to say it scared me to death. He now looks like a raccoon with all the blood vessals busted around his eyes all the way down to his chest. He has tried multiple meds including one where the side effects included him going into unprovoked rages against his one brother, who I might mention is the one who is always with him and already can tell when his brother is going into a seizure.
I found out today he hadn't been taking his meds for the last few weeks for a variety of reasons one being because I am now out of work and he knows the cost of them each month. I took the pills and will make a point of giving them to him each day.
The last time he had a gran mal and he looked like a raccoon he told me he had woken up like that about a year before when he wasnt living with me and just thought he was sick. I believe he must have been having these seizures much longer then what we are aware of.
I am so glad I found this site so now I have a place to look to share experiences as well as vent from time to time if that is ok with all of you
I found out today he hadn't been taking his meds for the last few weeks for a variety of reasons one being because I am now out of work and he knows the cost of them each month. I took the pills and will make a point of giving them to him each day.
The last time he had a gran mal and he looked like a raccoon he told me he had woken up like that about a year before when he wasnt living with me and just thought he was sick. I believe he must have been having these seizures much longer then what we are aware of.
I am so glad I found this site so now I have a place to look to share experiences as well as vent from time to time if that is ok with all of you