anyone else find seizures isolating?

[arnie]

Hi all. I have had 3 fairly "big" complex partials in the last 4 days, and the one I had this morning somehow made me feel very alone, isolated, cut off from everyone. Mostly a feeling of being emotionally alone. I don't know how much sense that makes. I realize that there has always been an element of that "aloneness" during the time the seizure is happening. It's not like the fact of having epilepsy makes me feel cut off, it's the minute or so that the seizure is actually happening, and it can spread into the post-ictal period for a while, too.
That's kind of where I am right now and it's not so fun. I'm also pretty drained and have a little headache. Again, I hope what I've just said makes sense. I'm feeling a little out of it at the moment. Anyone else feel that way? (The isolation, that is. Not the out of it.)

Thanks.

 

[masterjen]

I know exactly what you mean, and I often feel this way after a bad seizure. I've used the words "disconnected" or "feel like I'm existing in another dimension" to describe how I feel. I tend to avoid contact with people when I feel this way, and consequently don't go out until I feel more in tune with things. My seizures are nocturnal, so it is the following day I feel this way and it lasts from a few hours to most of the day.
I hope you feel better soon!

 

[arnie]

I know what you mean about the disconnection from reality and such, and definitely the other dimension stuff, but there's also just a loneliness and isolation that's there, and I suppose sometimes much stronger than others. I guess seizures can also amplify stuff that might be somewhere in there anyway. It's good to have this place where people can understand things that are hard to put into words.

 

[masterjen]

Sorry - I forgot to comment on the loneliness/isolation part, and that I can also relate to and having had a seizure, even a fairly mild one, does cause me to feel that way. In my case I tend to be introverted anyway, so you may be right about seizures perhaps amplifying what is more mildly already there. Interesting thought!

 

[Cint]

I've found that seizures, especially those miserable TC ones can be very isolating. I usually have a massive headache for a day or two and an achy body. It also takes me hours before I can fully communicate. Even with the CP, I feel so alone 'cause sometimes people think I'm either drunk or "spaced out" from drugs because I don't answer when spoken to. And I suppose I do probably "look spaced" out during the CP.
I hate it!