Anyone have Unverricht–Lundborg disease?

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AndrewIrish

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Hey all,

As my thread suggests, I'm trying to see if there's ANYONE on CWE, that has that particular branch of PME?

I match in a nearly identical way to the symptoms and diagnosis of that disease, but I'm trying to find someone whom has the disease first-hand to sort of 'compare notes' if you will?
 
I just googled that term as it is new to me and wow. What i found was that there are now treatments that work very well. Sorry to say the research did not indicate what treatments they are. Sorry that i can say no more about it. It is a form of epilepsy and i hope you can find some aid. It would be great to hear back from you.
 
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