Appt tomorrow these are my symptoms

[Athena22]

Ive been having some really good results the past few months, although dew to my resent change of medication I've started seeing some changes.
My Topomaz levels were begining to lower, and I had two bad seizures in two weeks. One landed me in the ER due to the size of the bump. It still hurts, and the smelling is still there ( this was last thursday-yikes) And this is simply just stressing me out. I know that I aggreed to lower my medication, but not like this. I mean I cannot sleep on either side of my of my body without pain now, on one my head is hurting, the other my shoulder will dislocate later on in the night.
Everything comes with the possibility of nonsuccess. I simply need to accept that this didnt turn out the way I hoped it would.. I mean I'm dizzy when I lean over still because I hit my head pretty hard.
I just dont know exactly what to ask the doctor tomarrow, shes the one who made the appt last minute.

 

[toro]

Ask any questions you are curious/worried about and any concerns you have about your meds.

 

[Nakamova]

Definitely let your doc know that you are worried that lower Topamax levels are making you vulnerable to seizures. Let us know how it goes.

 

[Athena22]

The nuerologist suggested I go back to my regular topomax levels. When lowering them, I was becoming very sensitive to the Topomax. This was all basically due to the amount to cognitive level I was having difficulty in achiving with the dosage of medication I had been put on....
So I'm basically back to square one. Which is sad. Two weeks wasted. I wonder if there is a drug out there that can be switched if I have to, from the Topomax. (I'm prob spelling it wrong)

 

[Nakamova]

I wonder if there is a drug out there that can be switched if I have to, from the Topamax. (I'm prob spelling it wrong)

Ask your neuro about this. It's his job to help you find a treatment that controls your seizures, but also doesn't also have bad cognitive side effects. There are lots of different epilepsy meds out there to try.

 

[valeriedl]

If my neuro sees that a medicine isn't working for me or I tell him I'm having problems with it he will suggest another med that could be better to take. He will tell me what the side effects of the different med are to let me know what I may be dealing with if I'm on the med. He will tell me that we may have to work with the dosages to find out what the right one will work best.

He has always come up with a different med to change to, I've never had to find it. He does let me make the decision to change to the different med in the end. It's not a "I'm going to put you on this med" thing.

You could get some information about different meds and discuss taking that med with him. Just because you read that the med can work better or that it works for someone else it may not work for you. It may not interact well with any other meds that you are on or another reason.

Meds are very frustrating to deal with!!!

 

[Athena22]

They are very frustrating, I live with my parents and yesterday I had two more episodes. I feel like I scared my them so both so bad ;-; One I didnt even remember.
Now their moving my medication not back to what it was, but to a larger amount- And I feel like its just better I don't do anything about it. since they said that the medication can take about a week to work.