Asking for help and telling the truth

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

kirsten

Account Closed
Inactive
Messages
1,005
Reaction score
0
Points
0
Last night I sunk into another pretty bad depression, or maybe it was something else. I just felt completely hopeless and helpless and lonely and in pain. I could barely breathe.

I went out to see some friends a couple of weeks back. I finally told them that I had been ill but I didn't ask anyone for help or company. Then I went home, back into isolation. Today I went out again and my best friend asked me about how I was and why I looked so calm and together. For the first time I told someone (outside this forum) how I had really been feeling, and that the only reason I looked so calm was because I was over-medicated at the moment. It really made me feel so much less isolated and I was amazed that he didn't treat me like I was crazy. It was just the first time I'd opened my mouth and told the whole truth of how I felt to anyone in my life. He asked me whether I'd actually directly asked someone for the sort of help I needed(of course I hadn't asked him either for what I actually needed, although he still did try to support me.)

Then we met up with some friends and an old friend asked me where I'd been. I told him I'd been ill and he asked me whether anyone had been helping me, and I said no. He said if I'd called him he would have come round and he would have helped. I am pretty amazed. Sometimes the cause and effect of these things is so basic and simple that you think it just doesn't work that easily. Apparently, sometimes it does. I actually can't remember what I said to my friend at all earlier but I do know that I put him in the picture and gave him every last detail of how I'd been feeling and now there's someone who knows.

Why is it so difficult to ask for help? And why is it so difficult to tell the truth of our situations? I forget who said it, but there's a quotation that goes, "If one woman were to tell the truth about her life, the whole world would split open." Of course, this situation is not isolated to women, but it certainly does feel as though if I told the truth of my present life, the world would split open, but it doesn't. Will I start asking for help? I'm not sure. We have a physical illness and so I am wondering why so many of us feel humiliated about needing help and about struggling with ill health.
 
my friends know about my epilepsy and when my seizures are acting up but know one would call me to save there life, so there not really friends.When I ask for help I'm always told I live out of the way and they apologize that they can't help me.
 
I think that NO ONE can really know how we feel unless we tell them. I know from my perspective, I don't want to be a burden to anyone. So I keep my struggles to myself. Perhaps it's a female thing? Perhaps we just don't want to know who will help, who won't. The one person that I could ALWAYS count on was my late husband. I still miss him dearly! But life goes on! It is my problem because "I" don't want to ask for help.
WHY? Don't know???
It is tough! But isn't life? So, I just do the best I can and be there for my kids and grandkids.
M
 
I think you're right it is a female thing to not ask for help because we are the healers annd the helpers of the world. We bear the yound and wre seen as the strong of the species (despite what the the men say). Im of Itailan/Irish descent God forbid we even show we have emotions. I just as you did reached out to someone and let dow my walls and it was hard. But he was proud of me. Wea are closre now and I know he is phone call away from keeping me from my old demons.
 
I, too, tend to not ask for help when perhaps I should. For me the prime reason is not wanting to bother others combined with wanting to be as independent as I've always been.
But also, it does get frustrating when people say to call anytime you need help, and you get responses like "Sure, be happy to help you on the weekend" and meanwhile it is only Tuesday . . .
Everyone has their own lives, their own commitments, their own problems - especially healthy people! Have you noticed this also? The two people on my "help list" who have chronic medical issues themselves are more likely the ones to come through to help at the time I need it, and yet they are also the ones I least like to request help from because I know they have their own issues to deal with.
 
I agree that others don't have much of an idea of what we really mean when we ask for help and that they are so caught up in their own lives that they don't have much to give, if anything. But I do know that those same people would have hours on end to offer me if I was well. Fair weather friends. That makes me wonder how most of the world views their communities and their relationships.

And I agree that struggling to ask for help can be a female thing. For example, a man in my friendship group had a stroke and broke his hip around the time i got ill. He's had people crowding around him, arranging alternative housing and lifts and all kinds of things for him. Those who have been supporting him are the self same people who haven't been supporting me. The difference? He made his problem known to all of us. I all but kept my situation a secret.
 
Remember this. To always speak your truth. My memory is so bad now. And it causes a lot of pain. I have a son with epilepsy and his memory is getting a little worse than it used to be. But he doesn't understand that and get's angry. Paint your truth, tell your Dr. It is the most difficult thing I have ever had to live with. But you can do it. Games , puzzles. Get out of your comfort zone. I am proud of you. You spoke up here. Love you. Teresa
 
Teresa, your message has meant a lot to me. Largely because I went to my psychiatrist the other day and told her everything and her response was so judgmental. I am going to commit to being open anyway, and to getting out of my comfort zone. I just might end up changing psychiatrists and, after reading Arnie's posts, to changing to an epileptologist.
 
Thank you for posting all this. I relate and i have asked people why it is that for some reason i feel a deep inner terror of admitting my issues about E to others. Like right after an absence seizure that was strong, people around me ask "did you just have a seizure?" I always must say No, No, i just spaced out for a minute. When inside i wish i could share it. That is one reason I love, love love this forum because everyone understands.
 
I haven't even had a diagnosis, but I am glad I stopped along this post. I definitely feel that way. because I get them so frequent at work, they tell me to talk to someone right away if I start to feel anything wrong. but it's so hard for me to admit it to them. i don't know why, they been so helpful. but shame, embarrassment, I used to be so independent?? I can't really say why. I'm not used to telling people my problems, and now it's important that I do? I am sorry you are going through that. I do know that i feel better emotionally After I told someone, as long as they been true friends at least.


Sent from my iPhone using Tapatalk
 
Back
Top Bottom