My 19 year old son had autism and epilepsy. He has had epilepsy since he was 14. He is also non verbal which makes it even harder. He has been on trileptal for 5 years, he tolerates it well, but it has not completely stopped his seizures, we added vimpat for 2 years recently, again it didn't completely stop his seizures in fact it helped at first then as we increased it , it seemed to increase his seizures. He did tolerate it well. We took him off of Vimpat this spring and tried depakote. That was a disaster! he became so aggressive and irritated ( completely unlike his normal personality) took him off and then recently we tried topamax- same reaction as depakote- total personality change! this is getting so frustating- these side effects are as bad as a seizure! We are leaning towards lamictal- but want to give him a break for a month or two before we start something new. Its really hard because he is non verbal and cannot tell us exactly what he feels. Anyone out there have experience with autism and epilepsy meds? I feel they react differently
thanks
thanks