Back from the Dr.

[PurpleAngel]

Kater's appointment was Tuesday at the Children's Hospital, so we went the day before so that we didn't have to leave for the 90 minute drive at 5 AM.

I don't really think there was anything that wasn't expected. While she has about 5 times a day that it is obvious she is having seizures, her brain is misfiring approx. 20 times an hour. Most of that has no physical symptoms..it is just happening. So in a way that is a good thing, but yet what you can't see can't be treated.

This was the first time we were able to get her to sleep for an EEG!! I only let her sleep for about 4 hours, so she was beyond tired. (evil mom!!) During sleep it was 15 seconds of spikes and then normal brain activity for about a minute and then 15-20 seconds of spikes. Not like I can understand them, but I am assuming that's not "normal". Her Dr. added Zarontin to the Depakote since she is currently taking 375 Mg of that 3 times a day and that is the maximum doseage for a child her size.

So that will be started slowly. 5 mL a night for 2 weeks, 5 mL morning and night for 2 weeks, 10 mL morning - 5 mL at night until we are at 10 mL morning and night.

 

[Bernard]

While she has about 5 times a day that it is obvious she is having seizures, her brain is misfiring approx. 20 times an hour. Most of that has no physical symptoms..it is just happening. So in a way that is a good thing, but yet what you can't see can't be treated.

EEG neurofeedback can really help cut down on that misfiring.