Mike Le H.
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In the hope that we can get some assistance and guidance, I am posting an excerpt of a "diary" I've been keeping.
Nov 11th, 2011
"After 3 long and difficult months, Linda is back in hospital again in an effort to get back control of her epilepsy and its associated seizures and panic attacks. A "backorder" of 1 of her meds 2 culminated with 2 Grand Mal seizures Aug 13th. and she's been fighting for control ever since. This time an EEG harness will be hooked up to Linda so she's back in the hospital again. As if 22 days weren't already enough. I cross my fingers in the hope that they finally get to the bottom of this."
We've seen the CTV article on epilepsy drug shortages on Oct 17, 2011 (sorry, can't post the link as of yet) and realized that Linda's situation was the same as Robert Logan and exactly like Diane Sallows in that Phenobarbital was Linda's replacement med. except that it took 6 weeks for Linda to seize.
Linda had not had one seizure all the while we've been together ...over 15 years. Always productive and balanced, Linda again lies in Intermediate Care awaiting new results.
We are frustrated and can use some guidance. How might we get in contact with those that have experienced the same situation as Linda. Is there provincial or federal assistance plans, any recourse, etc...
Thanks,
Mike
Nov 11th, 2011
"After 3 long and difficult months, Linda is back in hospital again in an effort to get back control of her epilepsy and its associated seizures and panic attacks. A "backorder" of 1 of her meds 2 culminated with 2 Grand Mal seizures Aug 13th. and she's been fighting for control ever since. This time an EEG harness will be hooked up to Linda so she's back in the hospital again. As if 22 days weren't already enough. I cross my fingers in the hope that they finally get to the bottom of this."
We've seen the CTV article on epilepsy drug shortages on Oct 17, 2011 (sorry, can't post the link as of yet) and realized that Linda's situation was the same as Robert Logan and exactly like Diane Sallows in that Phenobarbital was Linda's replacement med. except that it took 6 weeks for Linda to seize.
Linda had not had one seizure all the while we've been together ...over 15 years. Always productive and balanced, Linda again lies in Intermediate Care awaiting new results.
We are frustrated and can use some guidance. How might we get in contact with those that have experienced the same situation as Linda. Is there provincial or federal assistance plans, any recourse, etc...
Thanks,
Mike