Been to neurology

[Buddy's owner]

Went very well. I told him about what has been happening with my migraines and how my dog Buddy senses my seizures before they happen even though he isn't a seizure alert dog, and also mentioned the flashing lights which for me are auras/warnings, I mentioned that rather strange episode where I stared into space and my hearing just temporarily went compketely. He said yes we do need to up my keppra though to start with he wasn't sure what to do for the best. He is also sending me to an epilepsy nurse. Think he wants to see me again too. It wasn't doctor makee as he wasn't in, it was a Mr Kellet.

 

[Nakamova]

When will you start increasing the Keppra?

 

[Buddy's owner]

When will you start increasing the Keppra?

Either tonight or tomorrow I think.

 

[Nakamova]

It can be titrated up fairly quickly -- I hope you get relief right away.

BTW, for some people with migraines, a magnesium supplement can help. No guarantees, but it might be worth a try (if you're not taking one already, or it's not otherwise contraindicated). One of the best-absorbed forms in Magnesium Glycinate, taken two or three times a day with meals.

 

[Frink]

Good luck with the med increase, I hope you feel better.

 

[CQ:)]

Glad the appt went well, good luck with the med increase.

What did he say about the episode with the strange noise?

 

[Buddy's owner]

Glad the appt went well, good luck with the med increase.

What did he say about the episode with the strange noise?

He wasn't sure what to make of it but stated it may have been to do with my epilepsy.

 

[Buddy's owner]

It can be titrated up fairly quickly -- I hope you get relief right away.

BTW, for some people with migraines, a magnesium supplement can help. No guarantees, but it might be worth a try (if you're not taking one already, or it's not otherwise contraindicated). One of the best-absorbed forms in Magnesium Glycinate, taken two or three times a day with meals.

Thanks for that info. Will look into thaat. I told him about how I have been getting warnings he is going to have a chat with my doctor about another medication that isn't to be taken regularly like my keppra but only to be taken when I get these migraines to try and deal with the warnings. He also mentioned some ways to find out for sure if I'm having seizures, one thing was something you put on your bed and it will detect any seizures. I kniw you can get an app called ep detect though not on my phone you can't but seems that gives false alarms. I told him about a seizures years ago full blown tonic clonic at a sewing machine in high school he said that was dangerous, so I said I know that machine could easily have sliced my hand if the support worker who was with me hadn't stopped it an moved it away thrn moved me away, I know she was there as I was later told what she did and how the other children were sent out of the class room. Epilepsy does pick bad times to give us seizures, come on epilepsy you can't go making us have seizures on a bike I landed in the road that
time.

 

[valeriedl]

After some of my seizures I'll get horrible migraines that will last for hours. My neuro sent me to a headache dr. We tried several different meds but none worked. However I've never found any type of pain med for any type of pain I've had on any part of my body that has worked for some reason. I don't know if it's because of some of the epilepsy meds that I'm on or if it's just me in general so it doesn't mean that it won't help you.

 

[Buddy's owner]

After some of my seizures I'll get horrible migraines that will last for hours. My neuro sent me to a headache dr. We tried several different meds but none worked. However I've never found any type of pain med for any type of pain I've had on any part of my body that has worked for some reason. I don't know if it's because of some of the epilepsy meds that I'm on or if it's just me in general so it doesn't mean that it won't help you.

I'll try anything to kick these migraines out. I said to him that I'm aware migraines and epilepsy are close cousins and he said yes they are.

 

[seagull]

Migraine worse pain to have you have be migraine sufferer to know.People ask me about sz I don't know I not aware they happened but I know when aura like the fear or smell then I know migraine not far away.Maybe I make it worse knowing it going to happen but I think I nut someone If said psychological they ain't a nothing as bad as them.
My life revolves around them,i can not make firm arrangements in case
I taken morphine to aspirin nothing works,you just have front them out in dark room cold flanal and puke jug.,but I have discovered tonic water or bitter lemon if taken just at right time can help but Timing is crucial literally within minutes and that not easy.
I am of opinion that e and sugar levels a conection
Doc he's told me migraine ill show on eeg and not surprised nobody have head aches so horrible and eeg be normal.
My sympathy I know how you feel

 

[Buddy's owner]

Migraine worse pain to have you have be migraine sufferer to know.People ask me about sz I don't know I not aware they happened but I know when aura like the fear or smell then I know migraine not far away.Maybe I make it worse knowing it going to happen but I think I nut someone If said psychological they ain't a nothing as bad as them.
My life revolves around them,i can not make firm arrangements in case
I taken morphine to aspirin nothing works,you just have front them out in dark room cold flanal and puke jug.,but I have discovered tonic water or bitter lemon if taken just at right time can help but Timing is crucial literally within minutes and that not easy.
I am of opinion that e and sugar levels a conection
Doc he's told me migraine ill show on eeg and not surprised nobody have head aches so horrible and eeg be normal.
My sympathy I know how you feel

Well I have now upped my keppra to 2 at night and 2 in the morning rather than 1 and a half in the morning and 2 full keppra at night. The 1 and half was one full one then another one broke in half and I took one bit making it one and half. I'm sure everybody here will agree when I say epilepsy I hate you. Yes I hate epilepsy. Think we all do.

 

[350spider]

I agree with the suggestion of the magnesium. But I'd also check it by your neuro. My neuro insists I talk to him about anything new I introduce. It's a wise thing to do. So sorry about things getting on top of you now, but I hope it improves soon!

 

[Buddy's owner]

I agree with the suggestion of the magnesium. But I'd also check it by your neuro. My neuro insists I talk to him about anything new I introduce. It's a wise thing to do. So sorry about things getting on top of you now, but I hope it improves soon!

Thank you me too.