Blurry Vision

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HopeisAlive

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I just wrote my first post a little earlier today (my son is 5 and has been diagnosed with complex partial epilepsy). The past couple of days he has been saying things like; "I can't see very well, but it's just because I just woke up", "I need sunglasses to look at the TV", "Some things I look at are blurry". Im going to call his Dr. tomorrow to see what she says, as I am new to all of this, but I thought I would ask you all. Have any of you experienced blurry vision; could it be an aura or something else associated with the seizures? Or could it be a side affect of the depakote? And, Im sure there is a chance that perhaps this isn't related to the epilepsy at all, eh?

Im likely going to be posting a lot of questions for awhile, because I feel sort of blind and helpless because I do not have seizures myself and my son is only five, and though he is articulate, it's still difficult for him to really relay to me what's going on inside of him (especially since he likely doesn't understand it all himself yet). Anyway, thanks so much for your help! I hope you have a super swell night! ;)
 
Welcome to CWE. There is so much info here to learn from-check it out. As a Mom, you should check out the Nursery sub-forum. It is for parents of children with E. I'm sure you'll find some useful tips there & support by other parents.
As far as your son needing to wear sunglasses to watch TV, this is a real issue for some people-me included who are photosensitive. I would definitely tell his neuro about this. Good luck!
 
Thank you so much for your encouragement and advice on joining the nursery sub-forum, I will definitely do that! I appreciate your help! g'night :)
 
Hi HopeisAlive, welcome to CWE!

Blurry vision can be a form of simple or complex partial seizure. It can also be a a side effect, which makes things complicated. Either way it may mean changing his medication, so definitely bring it up with his neurologist.

Best,
Nakamova
 
Agreed

Nakamova said:
Hi HopeisAlive, welcome to CWE!

Blurry vision can be a form of simple or complex partial seizure. It can also be a a side effect, which makes things complicated. Either way it may mean changing his medication, so definitely bring it up with his neurologist.

Best,
Nakamova
Click to expand...

I too am a parent of a child with E and Nakamova is absolutely right. You must bring up all vision issues with your medical team.
 
Thanks everyone. My son's symptoms actually escalated after I wrote the post and I took him to the ER (pain in left arm, slurred speech, lack of balance when he walked, blurry vision, and headache in his forehead). He was ultimately admitted - the doctors were very concerned. He had an MRI done and it showed that he has an 'abnormality' on the right side of his brain. We don't quite know what we are dealing yet (still have to meet with neuro-radiologists), but they increased the dose on his meds to try to minimize the frequency and severity of the seizures. The residual effects of his seizures from Thursday lasted a long time and it took him days to return [close to] to baseline. It was a scary weekend, praying and waiting for him to return to "normal" but are we are thankful that we did see improvement. We are still very much hopeful and very much thankful for his medical team. The senior peds neurologist called us on Sunday morning to see how Evod was doing! What a blessing! Unfortunately, since this episode and the medication increase - his negativity, impulsiveness and such has increased. Which is both difficult and sad to me... but we are just thankful our son has a heartbeat and is with us!! It's our goal, as parents, to love him through this as we do the best we can, as we learn all we can, to help him. He's being so brave, and we are so very proud of him.

Thanks for listening and for your support,

Evod's mama, Jasmine.
 
Hope the docs can come up with some answers for you, and a treatment plan that doesn't mess with your little guy's personality. Hang in there, and keep us posted.
 
Jasmine, I'm sorry your little guy was hospitalized but maybe this will
yield something positive. His doctors seem to be very caring.
Evod is very lucky to have caring parents and you are lucky to have him-such a blessing indeed!
 
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