Brother has serious rage on kepraa

[Needhelpp221]

Hello, I need help and suggestions on what we need to do. In December my brother had his first seizure, he has no history of epilepsy but ever since December he has had 3 seizures a month. So the doctors first started him on dilantin he didn't like the side effects. So his doctor switched him to kept as he first started him on 500m which was fine, but the sezuires kept happening now he's up to 2,500 and it is causing him. Crazy rage issues he has literally tried to kill me on more than one occasion. We tried to ask the doctors to take him off or switch the meds but, my brother looks up the side affects and won't take any other med. we explained to him that not everyone gets affected by the side effects but he still refuses, to take anything but kepraa, I'm forced to not have anything to do with him because of his rage and mood changes.

 

[Fedup]

Needhelpp221

Keppra can also cause what is called keppra rage. Looking up the side effects is a good idea as it can give you awareness but as you said not everybody reacts the same way to a drug or has the same side effects. A diary needs to be keep of all his seizures and of the mood swings so when he goes to see his doctor and neurologist they can see what is happening, it would be better if somebody was to attend the appointment with him. Finding medication that suits you involves trial and error, you will eventually find the medication or combination of medications that suite you.

When the doctor or neurologist see and are told of the keppra rage they should change it themselves and if no insist on it being changed, you cannot have your lives or your brothers life destroyed by a drug.

 

[acshuman]

Your Brother Needs to Talk to Someone About His Keppra Rage!

Needhelpp221,

Is anyone able to talk to your brother? He needs to understand that in many cases of E the doctor may need to try several different AEDs before they find the AED that works for that case. This is going to take time because each AED has to be taken for a period of time that will give the doctor a full picture as to whether or not that AED is working for that person's E.
This is why I have always said that there are two things that a person w/E has to have: Time and Patience ! It will take time to find the AED that will work for his case and he has to have patience because finding an AED that will work in his case may take trying several different AEDs before finding the one that works.
He can't just close his mind off towards the other AEDs! He is only going to cause more harm to himself and everybody else if he continues to be so resistant about taking different AEDs!
I have taken Keppra for over 11 years and never had any type of side effects. That makes me one of the lucky people who take Keppra!
If he keeps refusing to try any new AEDs he may just end up getting himself committed to a hospital because of the harm that he can and may do to other people in his outbreaks of rage.
If he is reading the side effects that other AEDs may cause, why is he so set on continuing to take Keppra? Doesn't he realize that the Keppra is causing the problems with rage that he is having?
The biggest question may be: 'How old is your brother?' If he is an adult, he may be able to refuse to change AEDs. But, he may just end up violating the law if he hurts someone or damages something. Then he will have to answer for his actions and the courts will be able to send him wherever it feels he may get the most help. :twocents:

acshuman

 

[Needhelpp221]

He won't listen to us. He's dead set on kepraa nothing else. He's 26 years old anything ticks him off he goes into a fit breaking and threatening everyone. He hasn't had a seizure since September but the rage and things he says. I can't take anymore no can the people around him. He won't listen to anyone so we kind of just dealing with it but I'm kind of fed up of his behavior

 

[Porkette]

Hi Needhelpp221,

Just like your brother I had a very hot temper while on keppra and I had to get off the drug and go on vimpat which worked great. I also found that keppra triggered seizures for me.
One thing my Epileptologist did with me is put me on the medical marijuana (CBD) and it has done wonders. Tell your brother to give that a try you can check out the website
healtyhempoil.com and you don't need a prescription they will send it to you by mail and they give you a 90 Day money back guarantee if you have any problems.
Tell your brother to try the ketogenic diet that has been used for E. since 1927. The diet is high in fat but low in carbs and starch foods. This will help build up ketones in a persons body which in turn reduce/stop seizures.
Something else that may be triggering your brother temper is the area of his brain that's triggering the seizures. The frontal lobe controls a persons behavior and if there's any problems there that can sometimes cause a temper but each case is different.
Have your brother start taking vitamin B12 1000 mcg, once a day that has done a lot for me and a few of my friends reducing or stopping the seizures.
Here's wishing you and your brother only the best. May God Bless the both of you.

Sue

 

[Frink]

Hi Needhelpp221,
Welcome to CWE.

Keppra was very bad for me. I had horrible anger/rage issues and had to stop taking it.

Since your brother is an adult you cannot make him change his meds but maybe you can record his rage attacks and let his doctor know how bad his behavior has become.
Your brothers behavior is unacceptable.

 

[valeriedl]

I'm on keppra and I have very bad kepprage at times. I can't handle being around children anymore, they just drive me crazy and I'll start yelling at them. I've told people off in stores and just about any other place you can name.

My grandmother was also on keppra for a short time. She went from a sweet old lady to someone who would go into swearing fits and scream at my grandfather. She told the dr she wasn't going to take it anymore and went back to normal.

I've gotten so mad at times that I've wanted to punch people but I have to just sit back and relax. It's not easy to calm down at times. I've talked to my dr about going off of it but he wants to wait because it's helping my seizure a lot. He said it will be the first med that I go off of when he takes me off of another med. He as lowered my dosage and I'm doing better.

I don't know if anyone goes to your brothers dr visits with him but if they do have them bring up the kepprage, your brother's probably not going to be happy if they do though. Maybe his dr can explain that it's the med that is causing this and he might need to change it. I know it's hard to go off of meds if they're working but if the side effects are too bad then it's something that needs to be done.

 

[Topcat]

I didn't go into full blown "rages" on Keppra but I did act like a grumpy a hole.
I talked to my epileptologist and he transitioned me to Lamictal. I feel much better now.
As for reading the "side effects." I read them on my prescription for Trileptal and twice overacted (as in freaked out). And twice
went to different emergency rooms.
Although later my epileptologist lowered my dosage as a precaution. The tests at the hospitals showed nothing.
I already paid $75 (co-pay) for one emergency room visit. I now have co-pay bills for another ($75) emergency room visit and an ($300) ambulance bill. I just got them today and have them in my desk. Some Christmas presents eh?