I wish to extend all my appreciation to everyone who took their time to read and give valuable advice to someone like me who's currently in adjusting to my kid who has E.
It's great to find comfort to people whom, even if you don't know them personally, are also dealing with the same condition like in the case of My kid.. Thanks a lot Guys...
It's really difficult to try and comfort my wife since she has to deal with the pain most of the time. Since my work normally requires me to be out for at least a month at the time, all I can do is just try ease the pain away and give some advice mostly from what I read in the forum and through the Internet.
From the day we came to know that my kid has E, it seems like everything has changed dramatically.
I was fortunate enough to have some time off last week (about 5 days) and I personally saw my son have seizure attacks (twice) and had to deal with it calmly not for myself, but for my kid since I don't want him to see how difficult is for me to see him go through his seizures. Honestly right now, 2 months after we knew he had E, I'm still a bit clueless about so many things.
Although I was able to note down some things about his seizure attacks, I don't know who to ask, and the first thing that came to my mind was not the doctor, but you guys here in the forum. I hope you guys can tell me something about my observations:
1) My son normally is aware whenever his seizures are about to start. One time I ask him what was wrong since he seemed to have stop from playing and he said that he feels "it" is coming so I managed to carry him to his bed and he had his seizure there. Is it possible for him to know or control his seizures?
2) Everytime he has an attack he always tries to control it. I don't know if it's possible but I noticed that he tries to control it (and sometimes he's successful) until the point that he can't anymore and just gives in to it... Is it possible for him to be aware of what's happening even after his seizure attack?
3) Can drinking cold drinks, ice cream or anything cold or even chewing gum trigger his seizure?
4) I called my house the other day and my wife said he had 2 consecutive 15 minute seizure (at least), I don't know if it's accurate and I don't even know when can you officially start timing the seizures. Does it start from the time he has shortness of breath or from the start of his "jerking"? I told her 5 minutes is already long and that 15 minutes is quite impossible so I don't know if what she said was accurate...
Had his MRI done before I went back to work and initial observations point that it's not that serious but we have to go back to his neuro once i get back home in two weeks to verify this.
Hope you guys can share you opinions about this.
Thanks Guys....
It's great to find comfort to people whom, even if you don't know them personally, are also dealing with the same condition like in the case of My kid.. Thanks a lot Guys...
It's really difficult to try and comfort my wife since she has to deal with the pain most of the time. Since my work normally requires me to be out for at least a month at the time, all I can do is just try ease the pain away and give some advice mostly from what I read in the forum and through the Internet.
From the day we came to know that my kid has E, it seems like everything has changed dramatically.
I was fortunate enough to have some time off last week (about 5 days) and I personally saw my son have seizure attacks (twice) and had to deal with it calmly not for myself, but for my kid since I don't want him to see how difficult is for me to see him go through his seizures. Honestly right now, 2 months after we knew he had E, I'm still a bit clueless about so many things.
Although I was able to note down some things about his seizure attacks, I don't know who to ask, and the first thing that came to my mind was not the doctor, but you guys here in the forum. I hope you guys can tell me something about my observations:
1) My son normally is aware whenever his seizures are about to start. One time I ask him what was wrong since he seemed to have stop from playing and he said that he feels "it" is coming so I managed to carry him to his bed and he had his seizure there. Is it possible for him to know or control his seizures?
2) Everytime he has an attack he always tries to control it. I don't know if it's possible but I noticed that he tries to control it (and sometimes he's successful) until the point that he can't anymore and just gives in to it... Is it possible for him to be aware of what's happening even after his seizure attack?
3) Can drinking cold drinks, ice cream or anything cold or even chewing gum trigger his seizure?
4) I called my house the other day and my wife said he had 2 consecutive 15 minute seizure (at least), I don't know if it's accurate and I don't even know when can you officially start timing the seizures. Does it start from the time he has shortness of breath or from the start of his "jerking"? I told her 5 minutes is already long and that 15 minutes is quite impossible so I don't know if what she said was accurate...
Had his MRI done before I went back to work and initial observations point that it's not that serious but we have to go back to his neuro once i get back home in two weeks to verify this.
Hope you guys can share you opinions about this.
Thanks Guys....