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So Monday I follow up with my neuro. My MRI was perfect. I can understand that.
I had originally been seeing my neuro for chronic classic migraines (15-20/month). He throws in my lap while I am there that he's pretty sure my migraines weren't stand alone events. I haven't had a single migraine in almost a month now since hitting 750mg of Keppra twice a day. My migraines were not helped by propanalol (beta blocker) or while on topamax (never made it passed 25mg as the day I was supposed to up the dose to 50mg I got put on an antiviral for shingles). My migraines have progressively gotten worse since (safely I can say) July of 2010. May of this year was when I finally said enough is enough and said something to my old family dr. Whom told me I needed to go to the neuro and here's some propanalol and imitrex/maxalt til you get there. My neuro mentioned that some people with nocturnal seizures can get migraines during the day from their seizure the "night" before. Great is all I was even able to say to him. Then tells me this is probably what has gone on for a few years, especially since I don't regularly sleep next to anyone who can be like oh hey you had a seizure in your sleep.
He THEN tells me, im allowed to start driving again in february unless I have an "episode" reportable to another dr (ie emergency room trip). But then goes on to tell me that he wants to repeat my EEGs in August of 2013 to see if I can come off of the Keppra.
The more I think about this... 1. If I was having nocturnal seizures, shouldn't I be waking my 2 year old up, who still co-sleeps 90% of the night any more and still slept with me all the time since march of 2010? 2. Did my neuro seriously scold me for being single since "I don't have anyone to ask"? 3. This to me is the most important one... WHY if my migraines are seizure related would I even want to entertain the thought of coming off of the medications that are keeping my migraines at bay and helping me to "not lose consciousness/time/keeping my seizures that I do have during the day under control"????? That's the one I can't figure out at all.
I have simple and complex partial seizures left temporal lobe by the way in case that helps (and so you don't have to dig for it).
Thanks for any input or advice and even just reading. Sorry its so long.
Lisa
I had originally been seeing my neuro for chronic classic migraines (15-20/month). He throws in my lap while I am there that he's pretty sure my migraines weren't stand alone events. I haven't had a single migraine in almost a month now since hitting 750mg of Keppra twice a day. My migraines were not helped by propanalol (beta blocker) or while on topamax (never made it passed 25mg as the day I was supposed to up the dose to 50mg I got put on an antiviral for shingles). My migraines have progressively gotten worse since (safely I can say) July of 2010. May of this year was when I finally said enough is enough and said something to my old family dr. Whom told me I needed to go to the neuro and here's some propanalol and imitrex/maxalt til you get there. My neuro mentioned that some people with nocturnal seizures can get migraines during the day from their seizure the "night" before. Great is all I was even able to say to him. Then tells me this is probably what has gone on for a few years, especially since I don't regularly sleep next to anyone who can be like oh hey you had a seizure in your sleep.
He THEN tells me, im allowed to start driving again in february unless I have an "episode" reportable to another dr (ie emergency room trip). But then goes on to tell me that he wants to repeat my EEGs in August of 2013 to see if I can come off of the Keppra.
The more I think about this... 1. If I was having nocturnal seizures, shouldn't I be waking my 2 year old up, who still co-sleeps 90% of the night any more and still slept with me all the time since march of 2010? 2. Did my neuro seriously scold me for being single since "I don't have anyone to ask"? 3. This to me is the most important one... WHY if my migraines are seizure related would I even want to entertain the thought of coming off of the medications that are keeping my migraines at bay and helping me to "not lose consciousness/time/keeping my seizures that I do have during the day under control"????? That's the one I can't figure out at all.
I have simple and complex partial seizures left temporal lobe by the way in case that helps (and so you don't have to dig for it).
Thanks for any input or advice and even just reading. Sorry its so long.
Lisa