Comment about the VNS...
- Thread starter mspang
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I had it put in me 2007, but unfortunately had it shut off in 2010.
Why?
arnie
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I also am happy for those who have had success with it. I had mine implanted in January of this year and had very high hopes that it would work for me. Sadly, due to lots of bad side-effects, it was turned off on July 1 without ever having gotten close to a therapeutic level. Here's a link to my whole vns experience in case you haven't seen it. Page 12 is where I talk about having it shut off.
http://www.coping-with-epilepsy.com/forums/f23/my-vns-experience-22263/
Please tell us more about your experience with it, especially why it was turned off after apparently having worked for several years.
Best to you!
http://www.coping-with-epilepsy.com/forums/f23/my-vns-experience-22263/
Please tell us more about your experience with it, especially why it was turned off after apparently having worked for several years.
Best to you!
I had it put in me 2007, but unfortunately had it shut off in 2010.
Unfortunately stopped working.
arnie
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Unfortunately stopped working.
What setting were you at and how well had it controlled your seizures before? Did you have any bad side-effects from it?
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I got one in 2001 and the battery had be replaced twice.For my first 19 month I did great. Except 2 weeks after I got mine a new model came out. It never worked very well for me had to take lot of meds also.
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I got my first VNS in 2007 and had to have it replaced in 2013 because the battery died. I'm also taking meds with it too.
It has helped me a good bit since I got it. I'm still having seizures, not nearly as many and not nearly as bad as they were before I got it. It also brings me out of a seizure faster than before I had it. Mine is set pretty high and it took a while to get to this point though.
It has helped me a good bit since I got it. I'm still having seizures, not nearly as many and not nearly as bad as they were before I got it. It also brings me out of a seizure faster than before I had it. Mine is set pretty high and it took a while to get to this point though.
Actually my VNS could have been shut off maybe a year later if not sooner, but since it didn't cause any problems my neurologist left it on. The genius doc thought it was helping, what a dork. All settings were tried also.