My daughter,20yrs old, had her first grand mal in June this year. She ended up having 4 in one day and the eeg showed activity in the temporal lobe. She started on Keppra but had really bad side effects and is now on Vimpat and Lamictal with the neuro gradually building up the lamictal and then will do away with the Vimpat. It turns out that 2mo before the grand mal she was having mini seizures. Last month while on vacation, she had a grand mal in the middle of the night while sleeping and two hrs later went into several grand mals within in minutes of each other. After the last one her pupils stayed constricted and she was totally unresponsive for almost three hrs. This scared me to death and I had a few questions.
1. Is it unusual to have seizures that occur like this and you remain unresponsive for so long.
2. What can I do if she is having seizures in her sleep, is there some sort of an alert bracelet or something. {I wanted to use a baby monitor but she won't allow it because she is 20. She is really having a hard time with this and I am always afraid to leave her alone. but I can't stay up all night every night.}
3. Days before having her seizures she starts to lose her appetite, has a personality change, and has a lot of nausea. After the seizures she spends hours vomitting and at least 3 days with major appetite loss and nausea. She also breaks out in a rash. Has anyone experienced similar symptoms?
Quick note: after researching and watching her behavior I am pretty convinced that her disorder is called Catamenial Epilepsy and is related to hormonal imbalance. This helps in knowing the time frame of when seizures are most likely and will hopefully help in discovering nutritional and natural things to possibly minimize or get rid of the seizures.
Any information would be greatly appreciated.
1. Is it unusual to have seizures that occur like this and you remain unresponsive for so long.
2. What can I do if she is having seizures in her sleep, is there some sort of an alert bracelet or something. {I wanted to use a baby monitor but she won't allow it because she is 20. She is really having a hard time with this and I am always afraid to leave her alone. but I can't stay up all night every night.}
3. Days before having her seizures she starts to lose her appetite, has a personality change, and has a lot of nausea. After the seizures she spends hours vomitting and at least 3 days with major appetite loss and nausea. She also breaks out in a rash. Has anyone experienced similar symptoms?
Quick note: after researching and watching her behavior I am pretty convinced that her disorder is called Catamenial Epilepsy and is related to hormonal imbalance. This helps in knowing the time frame of when seizures are most likely and will hopefully help in discovering nutritional and natural things to possibly minimize or get rid of the seizures.
Any information would be greatly appreciated.