thelmonk
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Hello everyone. I am having difficulty making a decision on whether or not to do surgery. I have gone through some of the steps and even had the WADA, I hated that by the way. That was the most frustrating and difficult thing I have ever had to deal with, that I can remember. I remember it so vividly, not being able to speak while knowing exactly the questions they were asking.
Anyway, I have been on Keppra since January and since then I have not had seizures. I used to have a whole day full of seizures, petit mal or complex partial seizures, once every month and a half. Now I am on Keppra, Phenobarbital, and Tegretol XR. My girlfriend and my family don't want me to go through with the surgery, because I have not had seizures for a while. Their rationale is that because the medication is working I should just stay where I am. I have difficulty with it. Being dependant on the medication as my only means of being seizure free, I don't feel comfortable. I feel as if the medication is a ball and chain. I feel I can't be independant. I would like to do the surgery and eventually be medication free, even though I know that is the best of many possibilities. My family cares for me and so does my girlfriend. I want to be able to move anywhere I want and to go to graduate school without the gorilla on my back, the medication and the thought that anyday I might have a seizure. I am ready to take any outcome, even if it means that I might have to continue to take the medication. I just want to try the surgery, if there is any possibility that I might be seizure free.
I lived the first 20 years of my life without seizures and the last ten have been intrinsically linked to my crutch of medication and the whim of seizures. Does anyone have any stories or advice based upon my dillema? Thank you all. I think this site is wonderful and I would hope one day, whether I am seizure free or not, to help the country and the world to understand what epilepsy is and the daily trouble we go through.
Thank you,
Ryan
Anyway, I have been on Keppra since January and since then I have not had seizures. I used to have a whole day full of seizures, petit mal or complex partial seizures, once every month and a half. Now I am on Keppra, Phenobarbital, and Tegretol XR. My girlfriend and my family don't want me to go through with the surgery, because I have not had seizures for a while. Their rationale is that because the medication is working I should just stay where I am. I have difficulty with it. Being dependant on the medication as my only means of being seizure free, I don't feel comfortable. I feel as if the medication is a ball and chain. I feel I can't be independant. I would like to do the surgery and eventually be medication free, even though I know that is the best of many possibilities. My family cares for me and so does my girlfriend. I want to be able to move anywhere I want and to go to graduate school without the gorilla on my back, the medication and the thought that anyday I might have a seizure. I am ready to take any outcome, even if it means that I might have to continue to take the medication. I just want to try the surgery, if there is any possibility that I might be seizure free.
I lived the first 20 years of my life without seizures and the last ten have been intrinsically linked to my crutch of medication and the whim of seizures. Does anyone have any stories or advice based upon my dillema? Thank you all. I think this site is wonderful and I would hope one day, whether I am seizure free or not, to help the country and the world to understand what epilepsy is and the daily trouble we go through.
Thank you,
Ryan