decreasing meds

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

Nakamova said:
The likelihood of remaining seizure-free depends on what kinds of seizures you have, your age when they started, how many seizures you had before and after diagnosis, how responsive they are to medication, and how long they've been controlled.
Click to expand...

so true. and in addition it also depends on, at that point in your life:
the state of your health, level of stress/anxiety, sleep patterns, alcohol/drug intake (if that's your thing), and confrontation with other past triggers.

DAMMIT we deal with alot of shit don't we?!?!?!
 
So true Qtown. It reminds me of how I take solace, at times, in remembering that some have it considerably harder off than I. I have worked as an adult care taker for disabled adults and many times I worked for people who can not leave home at all. I could not live that way. And I know certain food additives trigger seizures for me and I am acutely aware of all ingredients in my food ( I read labels and ask wait people at restaurants for listings.) And it is not something that happens right away, it is cumulative and may take a few days for me to seize (so you can never tell when). I am saying this because There are several people in my town who have peanut allergies that will kill them with the slightest contact. I would rather risk a szs than certain death. And I can not drive but i CAN get out.
 
I have a question regarding med level. Not sure if this is the rt place to ask, but here it goes… you're taking say Dilantin and the therapeutic level is between 10 - 20. You're level drops to 5 and you have a TC seizure. Would this be the blame of even taking the meds or the fact that there was a brain defect and meds were not high enough to stop it. I have asked Dr this question and either I'm not asking the question in a way they understand or I really don't understand there response.

Basically… I have wondered in the past when u have seizure and the level is low, if I had not taken the stuff for it to get low then maybe the seizure would not have happened.

Really appreciate any input. Seems so many understand the triggers they have and why they have them. I'm suppose to see neuro Aug 8th. I just feel like I need more understanding or questions answered. Hopefully will achieve this on the 8th.
 
I think that it may have to do with the theoretical elasticity of the brain.
While there is some damage that can never heal, with altered nutrition and some therapy (music), the brain can heal, and perhaps this is the thinking of your doctor?
 
Also, some meds can be less effective over time as your brain and body adapt to it, which means that you may need to switch.
 
You must log in or register to reply here.
Back
Top Bottom