Dilantin & ED?
- Thread starter JoeP
- Start date
Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
RanMan
Too Much Experience with Epilepsy
- Messages
- 408
- Reaction score
- 0
- Points
- 91
Joe,
You're not alone.
I've been on dilantin for 31 years and have had ED since 1998 as a result of the long term use.
Talk to your Doctor. (my DR. is a woman and I talked to her about it to see if I could get a "RISE" out of her.)
Randy
You're not alone.
I've been on dilantin for 31 years and have had ED since 1998 as a result of the long term use.
Talk to your Doctor. (my DR. is a woman and I talked to her about it to see if I could get a "RISE" out of her.)
Randy
RanMan...Thanks. I also am going to see a nuerologist someitme next week to talk about some things, ie: memory problems, poor concentration and sometimes slurred speech. Have been seeing the same Dr since i was diagnosed at 13, (I'm 38 now), but thought I should go see someone else. Has been driving my wife abousolutely crazy, even threatened divorce a few times because of this. Do you have any of those issues and how do you deal with them. Do you think it is wise to see a neurologist rather than my reg dr.?
Joe or Ran,
I was wondering if you ever got this figured out. I started having troubles in this area as I began tapering off of the Dilantin. I am now on Keppra, and while I can still function, it is not very good and my libido seems much less than before. But, again, I want to stress that I didn't notice any problem all the years I took Dilantin, it was only once I began stopping it that the problem manifested itself.
I was also taking Neurontin together with the Dilantin, so my doc thought maybe the Neurontin had a greater effect once the Dilantin was gone and now I am on Keppra. Things improved for about a month during the transition from Neurontin to Keppra, but now not so good anymore.
I am thinking of going back to Dilantin, but not if it is to blame to begin with. In your experiences, do you think it could be Dilantin to blame if the problem only began during the taper down period? I haven't been on Dilantin now for 2 years. My neuro just says go back to Dilantin, but I dont want to make the problem any worse. Also, I'm not married and I don't date because of this and I am worried that I may be messed up and won't be able to be with a woman again.
Thanks.
I was wondering if you ever got this figured out. I started having troubles in this area as I began tapering off of the Dilantin. I am now on Keppra, and while I can still function, it is not very good and my libido seems much less than before. But, again, I want to stress that I didn't notice any problem all the years I took Dilantin, it was only once I began stopping it that the problem manifested itself.
I was also taking Neurontin together with the Dilantin, so my doc thought maybe the Neurontin had a greater effect once the Dilantin was gone and now I am on Keppra. Things improved for about a month during the transition from Neurontin to Keppra, but now not so good anymore.
I am thinking of going back to Dilantin, but not if it is to blame to begin with. In your experiences, do you think it could be Dilantin to blame if the problem only began during the taper down period? I haven't been on Dilantin now for 2 years. My neuro just says go back to Dilantin, but I dont want to make the problem any worse. Also, I'm not married and I don't date because of this and I am worried that I may be messed up and won't be able to be with a woman again.
Thanks.