do you know of any seizure videos online that are good tonic-clonic videos?

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petero

petero

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I have only found one, and that is from a first-person perspective

ones I've seen from a third-person perspective have never seemed like very good vids - they're crappy flip-phone videos and things

I recently had a cluster of tonic-clonics, but still it occurred to no one (not my girlfriend, not my mom) to try to take a video of me - what dipshits!

I have persistent feelings of stupidity not being able to confirm things for myself, visually

has anyone ever found any footage online that is filming an adult having a full-blown tonic-clonic seizure - and footage that is filmed with a decent camera? better than a POS 1bps phone camera?

links?
 
I might be persuaded to share my most recent one with you. I have it set to private on Youtube right now. But this is one that I've watched several times My husband said that it's nearly identical to a few that I've had.
 
There is another one that I have been trying to find again. I watched it months ago, and then just a few days ago stumbled upon the thing again. They've taken it off of youtube, but it was still posted somewhere. It's a decent video. The woman tries to get up and leave at the beginning of the post ictal phase, but when I tried to find it again last night I couldn't. Not even in my browser history. So, if I come across it, I'll make sure to post it here so I won't have to go insane hunting for it again.
 
I have seen both of these before. the first one really feels familiar to me. I guess I can feel that motion/muscle group- the feeling like I tried to crush a basketball between my knees. one of my sweet spots I guess.
it's great quality vid too.
 
who the f*** is that dude man-handling her in the second video? if someone was touching me like then when I started coming back into reality they would be decapitated. It makes me sick just watching him roll her around and stuff.
I guess they have their "routine" worked out or whatever - but still.
 
It's her husband. And no, that one isn't me. My video is set to private. You would see my husband petting my hair, and telling me that I'm ok, it's almost over. And when my top half starts to rock violently he puts his hand behind my neck to support me.

She seems to be very "enthusiastic" about getting up and getting the hell out of whereever she is as she's coming out of the ictal phase.
 
yeah - it makes me think she's subconsciously trying to get away from that GUY, but that she doesn't really understand the experience at the time

postictal I think I have had a difficult time differentiating from the environment and my headspace - as in "what is this environment doing TO me" and not "why is my brain doing this to me"
 
That makes sense. I don't really start to become aware for a good 20-30 minutes. It seems very easy to say "lay back down" and I listen. But I can see that if my husband wasn't right there, how I could easily get up and get hurt.
 
judging from the transpiration of events I'm not aware of (getting to an ICU bed from my house for example) there must be some times I'm out of it for at least that long too - and longer, up to at least a couple hours sometimes.
I must have some types of lower brain function going on - like "move onto this gurney" and I concede, and things like that which probably take less time to achieve than what I would call a level of consciousness - for example when I finally open my eyes and understand that I'm in a hospital... and then higher levels of function when I really start to have some normalcy back
 
I was completely conscious when I arrived at the hospital. But I'm not quite aware when, lets say my husband gives me ativan. It dissolves quickly, so he usually just asks me to put it under my tongue and only asks me to take a sip of water if he thinks I can swallow. I never remember. It usually takes me a good 30-35 minutes to "wake up" enough to remember. And on days that I cluster, I might only remember some of my in betweens.
 
I worried when I finally woke up today that I'd had a seizure. I slept VERY late. My kids are amazing. They just hung out and read all morning.
 
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