Do you think it's possible this is how it all began?

[LJ-Bain]

I was talking to my mother and learned some new things about a past health crisis and was wondering if my brain went through some hypoxia and if I suffered a teensy weensy bit of brain damage.
When I gave birth to my first daughter I actually had some post partum hemorrhaging.
It's amazing what they don't tell the patient in an emergency. I just remember being really tired and sleeping alot and having to sign a form authorizing a possible removal of my uterus. They just had to do a D & C. The pesky nurses kept on waking me up for blood pressure readings.
What I didn't know is that my blood pressure went dangerously low. She said that the doctors said that I had the blood pressure of a dead person.
50/30.
Ohhhh. That's why everyone was crying.
This was 6 years ago and when my daughter was 1 1/2 when the seizures began.

I wonder if there is a connection?

Of course all brain scans & mri's don't show any damage but I know teensy things can cause a boat load of trouble.

I should give up trying to figure out why. Most people never know.

 

[Nakamova]

This might be relevant: http://www.ncbi.nlm.nih.gov/pubmed/20514973

Though it could also be coincidence:
http://www.news-medical.net/news/20...age-increases-2825-between-1995-and-2004.aspx

Did you find out what may have triggered the postpartum hemorrhage, and/or what may have triggered whatever triggered the postpartum hemorrhage? Maybe that is a factor related to your seizures.

 

[MaeDae]

I understand how you feel. I wasnt told that after my aneurysm clipping that I could experience anxiety or seizures. It wasnt told to me, at least I dont remember by the dr's but by my family. They shared that with them and not with me. When strange events started happening, I started asking questions and then my family told me. It was confirmed by dr's on follow up visits when they ask if I had any anxiety or seizures or other cognitive problems. Not knowing is hard. Are your seizures under control? I hope that they are and if not, I hope that your dr's are working on it for you. I wish you peace and pray for your health and strength. I'm still waiting to hear dr's say just what is wrong with me; Is it Anxiety? Seizures? Both? That's what I like about CWE, I can discuss just how I feel and not be judged.

Best wishes!

 

[LJ-Bain]

Thanks Nakamova! They weren't sure what caused things. I had a c-section so it was unlikely it was retained placenta but they did an extra scraping in the D & C just in case. (sorry, I know that may be TMI)
But they also think I might have had a lazy uterus. The contractions never were really that strong and even stopped and she never descended. With the following two I went to 40 weeks and 38 weeks and never experienced contractions.
Thanks for the links! As always!
Ever informative.

 

[LJ-Bain]

Thanks maryltyme!
Isn't it sad that we aren't told everything about our own health? I don't quite understand it. It makes me question what they tell me.
I hope the dr.'s figure out what is going on with you too and your well wishes. I wish the same for you. My seizures are not under control but I hope one day they will.
CWE is such a great help and comfort...I agree!

 

[acpollard2010]

lj that is awful that happened to you and crazy they didn't tell you, but i had to find out about sudep through email not a dr. and i thought yours were getting towards controlled!

 

[LJ-Bain]

I think it is crazy that they didn't tell me. I suppose they didn't want me to become anxious. My mother probably thought that I already knew.
My seizures have improved! 3-5 a day as opposed to 8-12 a day is alot better! I would like to not have daily seizures. But I'll take any improvement of course! I shouldn't complain really. Many people have it alot worse.
For instance I have never injured myself besides some bitten cheeks and tongue in the morning and a little bruising from the day so I shouldn't be greedy. I have only simples and complex ones and not any tonic clonics that I am aware of.
Plus I feel alot less moody now that I'm off Keppra. Hurray!
So I am happy.
I don't know why they don't tell more people about Sudden Unexplained Death! And to find out in an email is not the best way.