Last year I had a grand mal seizure. The only other one I had in my life was ten years previously. I've been on Topamax every day for the past year since the grand mal, about 200 mg. the doctors debate if I even have the seizures, one says I have migraines. One thinks I had grand mal. I was unconscious and seizing for both. Sounds like I had seizure, but whatever. For both of those I had a similar aura....tunnel vision, fade to black but with my eyes open. I knew it was coming and I knew I was fading out or fainting.
But what is new is the rabbit hole Alice in wonderland stuff. It is like a scene from a movie unfolds in front of me...like a am part of a play. It's massive déjà vu. It usually is a group of people in a circle and the dialogue unfolds Ina way that I know who is going to say what before they say it or I tell them what they are going to say in advance or the dialogue gets dispersed one word at a time to each person in the circle...or it becomes a song or a rap or yesterday I just kept hearing myself say I'm having a seizure over the dialogue...somehow the voices and scene was disjointed like a bad Japanese movie dub job. Then near the end I was just lost on my head and I had to catch up to the scene in a way and I could hear my husband screaming at me. He thought I was drunk and didn't know I was having a seizure, and I remember hearing him and just not wanted to come back. And then I saw my son run by and I said to myself go back for him...and I literally came back and woke back up into the present....but it seemed like I was gone a really long time.
The last time this happened to me it was only 1-2 minutes and I was almost trying to catch up,to real time, and a coworker was rubbing my arm and calling out to me by name...like she saw my eyes roll in my head and knew I was "out of it" and waited for me to respond back. Yesterday it went on and on and on for at least five minutes.
Is this what you all call partial seizure? I never lost consciousness or actually seized or needed medical care. Do I need different medication for these? I've reported two of these to my nuerologist now and he has done nothing, not even named them. Should I change doctors?
Any advice or help would be appreciated.
Does it mean anything that I am changed from the grand mal to this activity?
Does anyone else get afraid that we aren't going to come back from one of these? I was so afraid I was going to die inside of y head yesterday....so very afraid....please respond.
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But what is new is the rabbit hole Alice in wonderland stuff. It is like a scene from a movie unfolds in front of me...like a am part of a play. It's massive déjà vu. It usually is a group of people in a circle and the dialogue unfolds Ina way that I know who is going to say what before they say it or I tell them what they are going to say in advance or the dialogue gets dispersed one word at a time to each person in the circle...or it becomes a song or a rap or yesterday I just kept hearing myself say I'm having a seizure over the dialogue...somehow the voices and scene was disjointed like a bad Japanese movie dub job. Then near the end I was just lost on my head and I had to catch up to the scene in a way and I could hear my husband screaming at me. He thought I was drunk and didn't know I was having a seizure, and I remember hearing him and just not wanted to come back. And then I saw my son run by and I said to myself go back for him...and I literally came back and woke back up into the present....but it seemed like I was gone a really long time.
The last time this happened to me it was only 1-2 minutes and I was almost trying to catch up,to real time, and a coworker was rubbing my arm and calling out to me by name...like she saw my eyes roll in my head and knew I was "out of it" and waited for me to respond back. Yesterday it went on and on and on for at least five minutes.
Is this what you all call partial seizure? I never lost consciousness or actually seized or needed medical care. Do I need different medication for these? I've reported two of these to my nuerologist now and he has done nothing, not even named them. Should I change doctors?
Any advice or help would be appreciated.
Does it mean anything that I am changed from the grand mal to this activity?
Does anyone else get afraid that we aren't going to come back from one of these? I was so afraid I was going to die inside of y head yesterday....so very afraid....please respond.
Sent from my iPad using Tapatalk